SoWorried_1

Good morning/evening everyone , oh how I wish i woke up and said the same - oh i remember this days :((( tha you for sharing your thoughts and ideas. When there is not much offered by doctors, advice from parents that deal with similar problems is invaluable. another concern I have is sleep/ tiredness. When he is tired , tics get worse. We try to do all “standard calming techniques”: no crazy activities before bed time, family story time, no tv before bed, good amount of outside time, etc but sometimes it doesn’t work. He used to sleep in and now he is getting up at 5-6 am. By midday he is exhausted. At daycare they have “nap time” , I think it helps a bit after so many activities there but still not enough rest because they can’t really rest there with so many kids around. During weekend we have “rest time”, I think it helps. please share what evening “calming techniques” worked for you guys or how did you make your children sleep more ? thank you again everyone.

I meant to add about ADD/OCD. I’ve been monitoring it too and I think most of the time I don’t see it. There were few evenings when he was unmanageable, behavior was terrible but I think it was because he was extremely tired ( maybe that’s what I want to think) but these spikes in bad behavior are at the same time tics spike. Maybe he is starting to “mask it” by running around and misbehaving? I don’t know. 98% of the time behavior is ok. when he has tics spikes, I’m afraid to discipline him because I think I might cause more tics don’t know what to do. also meant to add- next year he will start school, and there will be a lot of new “stress”. I can’t even imagine what will happen with tics

Good morning, Thank you for your reply, yesterday was very hard “tics day”. I wrote this message after children went to sleep and I kept checking for responses here. I did analyze years of behavior and possible tics before it spiked at 3,5yesrs and I think you are right , he did have some Unnoticeable tics that we didn’t see. we went though all relatives that we can remember, nobody has in In the family and i believe most people with tics have it in the family. We have pretty stable family, always wonder why it started. If you can share your thought and findings or causes, I’d be very happy . Ive been documenting tics for a while and do think that it gets worse in the spring ( so far- 1,5 years in) and after “stress” . Pediatric neurologist wasn’t really helpful, he said just to monitor, but you know how we/ parents feel when we see it for weeks/ months every day. Since stress triggers it most of the time, I want to see if therapy with psychologist will help and he / I can learn how to manage “baby stress”. Has anyone tried it with psychologist? iknow Mert tried to manage stress with exercises and expose to it slowly. how were your kids when they got older and kids at school started to recognize tics? How did you and your children handle it? my other big worry is that tics will get so bad he will start banging his head throw out swear words, that would be a nightmare thank you again for your time, it means a lot to put the heart here where you can relate and understand. ps: Mert, I’ve been reading a lot of tics, and your findings/ comments are the best , after reading it I thought- he should write a book about it when he is ready, because so far it’s most down to Eearth and corrects findings and solutions. thank you again

Good evening everyone, I’ve been reading and following all updates for a long time and finally got courage to write here. My son’s tics started 1,5 years ago right after strep infection/ sore throat. He was very young- 3,5 . He just turned 5. Same as other kids, we went through many types of tics, but it got really bad in the last month( sometimes in April ), It just hurts me so much that I can’t help him. I’m so worried kids will start making fun of him And I can’t help him. Mert, madimi, how are your children doing now ? Tics any better ? Worse ? From your experience over years, do you remember if year1, 2, 3, 4 ( or any other years) tics got worse ? For now it looks like year one was “ok” but it’s getting worse now I’m loosing my mind here, can’t sleep, can’t eat. Wish I can do anything to help him Thank you for your time everyone