careair

Louisville KY After being admitted to hospital for 2 days of GI testing (after 2 years of unexplained "tummyaches"), ended up being referred to neurology and spending 5 days, including 12 hours on quarantine for menengitis spinal tap test, MRI, many many blood/urine tests, etc. Two neurologists in the practice were ready to send our 6 year-old up to the psych ward until the chief of peds neurology Dr. Vivay Puri saw her and told us about PANDAS. At our last visit he invited us back the next day to be seen by Dr. Mink, a Tourette's specialist from NYC, who was in town to speak and did some rounds with some of Dr. Puri's patients. We were warned Dr. Mink is NOT a pandas believer so it was an interesting take. Dr. Mink explained that anxiety disorders can manifest in many ways, and that while it is unusual for so many manifestations to come crashing down so suddenly, doesn't mean that something (pandas) triggered it.

My daughter has asthma and thus has had slight trouble with excema (maybe it's KP?). Typically summer sun and chlorine exposure helps, but this past summer she had a big patch of it around one side of her chest/under her arm . . . and the PANDAS appeared Aug. 28.

We've been on Amoxil since Dec. 12. Heard about the Advil here and started it about a week ago. Right now doing 2 tsp, 2x/day. Daughter is 6 1/2 and about 50 lbs. Have noticed her vocal tic diminishing and overall less anxiety/opposition, a more happy, agreeable girl in general. Maybe coincidence that her symptoms are waning, as PANDAS has been with us since Aug. 28, 2009.