julesmom

My daughter's symptoms started around 5 yo. They were pretty severe. Antibiotics didn't touch it. We had 6 rounds of HD IVIG with amazing results. We saw some minor flares after infections but nothing compared to original symptoms. What I found extremely helpful was liposomal colostrum. I will keep her on it thru fall and winter. She seems to do pretty good in summer. Ill also treat with D with K throughout year

We found liposomal colostrum very helpful after 6 rounds of IVIG.

My daughter has had 6 monthly infusions. She also has hypogammaglobulinemia. It seems to keep her in remission for about 4 months. We are meeting with dr next week to discuss possibly doing IVIG every 3 or 4 months to try to keep her from flaring. No this was not a cure for us but an absolute life saver. Only thing that worked. Looks like a lot of the children that also have an immunodeficiency will need ongoing treatment. Not happy about it but we have to do what we need to do to keep her from going off the deep end.