sparky

TMom, I have been searching the internet for her movements and from what I gather, and what neuro said at age 2-3, she has stereotpyed movements. She's had them since infancy, they just never went away. I read they peak at adolescense, she's about to turn 13 and seems to have gotten worse in the past month. My son is on antibiotic for non Group Strep currently, but not sure if this is the reason for increased lately. We have appt with ped next week to discuss what to do next. She seemed to control them at school in 5th grade when a few kids made fun of her. She says she doesn't even know she does it, unless she is looking at her hands. I am not sure about the OCD when it started. SHe used to do cartwheels and hasn't done those in a good while, and this may have been an OCD, as she said she couldn't stop at times and something told her to do them. Since Dr. Murphy is in my state, I am going to ask the ped if they think she should be evaluated by Dr. Murphy. Thanks, Sparky

[

I introduced myself on tics board but someone suggested I ask questions here. My main question I have is that my soon to be 13 yr old d has been having tic like movements (mainly when she is excited or thinking about something, sometimes fo rno reason) since at least 4 months old. Neuor doc said not tics but stereotypes, maybe known as stimming these days. SHe used to have a possible OCD with wanting to do carthweels on the living room floor and said she couldn't stop it, and has an issue of putting toilet paper in her underwear thinking she is leaking urine, but no problem, just says she feels like she is going to. Used to line up her barbie dolls a lot and play school, never has been a neat freak or hand washer. My mil has major OCD isssues. I had strep B at time of her delivery. She has never had strep throat that I recall. Had eating disorder last year with fear of fats and carbs, weight gain..major problems, but better. Has always been anxious child but nothing where she needed meds. Highly intelligent and social. Very neat handwriting ( i read handwriting can be affected) Has has had major food allergies and such all her life. Eczema when younger. SHe will also do faical grimacing when she does her hands and hold breath and stare intenlty at times.

Faith, My d stated doing the movements at least 4 months old, she is now almost 13. I guess people would call it stimming, the neuro doc when we took her age 2-3 siad "stereotypes"....seen in delayed kids mostly he said, but some non delayed kids have them .. He thought she may grow out of them. Mainly the hands bilaterally back and forth rotates side to side at wrist, but also moves her fingers back and forth...very very rapidly. when baby she would move her feet like this . This week in teh van she surprised me and held out her legs stiff when doing the hands..sometimes facial grimaces and holds breath and stares intenly into space momentarily. she hld breath like that as baby too sometimes, but not very long. She only does this when she is excited or if she is even thinking about something she likes..she is in her little world and will do it with her thoughts..she's highly intelligent, very social, no behavior problems. She had fears of some noises when toddler, had a strong startle reflex that lasted a good while, had dog phobia and fear of thunderstorms, more than avearage age 7-8, the eating disorder was last year and it was fear of fats, carbs, gaining weight..real fears. I was in touch with a Dr. mentioned here recently and this doctor said in email they don't know everything about the strep and the fact I did have strep b at time of delivery maybe be important. Yes AN is under control, thank God, literally. much much better. Sorry, will get to your other questions tomorrow...

[

CP, Yes, she has used the Carlson Salmon Oil in past..seems like it made her mentally worse, but will try again. The stool analyssis recently from Genova said no candida yeast but mild to rhodotorula yeast. no parasites.

Hi Sparky sorry cant post more right now but I did notice the references to strep in your post....have you checked out our PANDAS board as some of what you describe is also seen in kids with PANDAS dx http://www.latitudes.org/forums/index.php?showforum=17 Yes, I came to this board from another member who posted about PANDAS on another forum I am on. I have checked the PANDAS info, thanks. I have been in touch with Dr. Cunningham and have fwd the info on the study to my ped. I will talk to her about it next week when she sees my d. My ped is very familiar with PANDAS. My d was checked when she was 2-3 to the antibodies as where we live, at the time Dr. Murphy was in our area, and my ped knew about it years ago when it was being studied. Since then, she has been checked twice with negative blood work. My ped feels even though her blood work negative, there may be a good chance she has reacted. She has had many allergies in general all of her life, I know PANDAS is autoimmune. The son that had non group A strep thru throat culture was adopted last year and new in our family when she was diagnosed with the eating disorder copule months later. She had fears of fat, carbs, wt gain, etc.. He did have strep throat after her diagnosis, one time. and had cellulitis several months ago with skin bacteria but didn't get tested for it. I had Group B strep at time of her delivery. This may be a factor for her early onset tic like behavior..not sure. She had a recent stool analysis and strep was found, not group A, and strep can be found in normal. Whether or not her tics are related to all this I don't know. I would like to have her tested thru Cunningham study though. Glad I found this forum.

CP, Yes, you are correct, for anorexia serotonin is a player. For binge eating or bulimia it may be dopamine. She has been on these supplements: IntraKid NeuroReplete (these are the 5-htps) Glutenzyme Super Nu Thera (Kirkman) Drenamin and Paraplex (Standard Process) Primadophilus Reuteri (Probiotic, just recently) Evening Primrose Cal, Mag (was magnesium oxide but recently switched to the mag citrate) Inositol (Kirkman) She was on these supplements most of them during school. She had a lot of pills to swallow and thu summer I have lowered the amount significantly. She only takes the Neuros 1/2 dose now instead of full. No IntraKid, 1/2 the SuperNu Thera, taking the probiitcs, glutenzyme, drenamin and paraplex (started again recently) ALl of these are under the supervision of her ped. These are the tests she's had in past year: Celiac negative Pyroluria positive histamine -High Histamine Copper/zinc- higher on copper Comprehensive Digestive Stool Analysis from Genovia ( no lactobacillus found, some other positive findings) Salivary Cortisol Test ( very blunted coristol during day, very low (IGA Secretory) Not sure if it was IGA or IGG but related to gut mucosa protection She had a theatre production she was in in May and she seemed to be ticcing ( if this is the proper term for her behavior) after I'd pick her up. There were bright lights during practice on stage or could have been mold in bldg. During her performance (she was the lead role) she could prvent the tics, and control them. But when everyone came out at end to bow, I could telll she did it some then. She seemed very wound up in June, new symptoms of tongue sticking out and wiggling from side to side, tapping on counters, tables, beating with hands at table, like she was in constant motion . The tongue and beating/drumming were new, she was revved up. So, I took her off some of the supplements thinking something was revving her and it subsided. But the past several weeks she has been ticcing more. The ped swabbed us all ( in our family) for strep tested in office. My one son came back with positive to NON group A. He is being treated with antibiotics. We are also doing NAET, ( I work for chiropractors), and she keeps checking positive to strep vial x 3 now and not clearing. She also tested postive to serotonin last time. Thanks

Cp, She was diagnsoed with an eating disorder last year. We had discussed a gluten free diet with her ped and decided against it. SHe has gained a significant amount of weight but still needs to gain more. She is taking an enzyme that helps to break the gluten down per her ped's recommendation. I have been looking into magnesium info here, and I'm convinced she has magnesium deficiency and the mag we've been giving her has mostly been mag oxide which I read was not good at being absorbed. I gave her epsom salt bath last night and started using mag citrate. I want to try one thing at a time to see what will help. Thanks

I have a 12 yr old daughter who will be 13 next month. Since she was around 4 months old she has had what a neurologist diagnosed, when she was 2-3 yr old, as stereotypes. He said these are seen in developmentally dealyed children but sometimes seen in "normal" kids. She has always been very smart child and does not fit the Autistic Spectrum accroding to her ped. The movements are only when she is excited. She can be thinking about something that she likes or anitcipating doing something and she will have the movements. They mainly involve her hands/wrists where she rotates them back and forth in unison and sometimes will move fingers with it. These are done very rapidly. When she was younger as infant and toddler she would also mover her feet/ankles sometimes while she was moving her hands/wrists if she was sitting down. She would also do this when riding in a vehicle. She will sometimes hold her breath and have a facial grimace and sort of have an intense stare into space momentarily like she is focusing on something. The neuro doc told us she would outgrow this most likely but hasn't. She says she doesn't even realize she is doing it. She has had food allergies since infancy. She had celiac testing and came back negative and she is higly sensitive to Gluten though thru IgG testing. It seems thought that she mainly does this when she is doing something she likes or is tinking of something she likes. I am interested in knowing if any others here have kids with similar history. Thanks Sparky