natanddan1

Thanks for your responses. We have not been told that Dan have TS although there does appear to be links to his tics. His noises are not words or anything that sound like words! but maybe this does not matter! (not sure really as specialist today was hopeless!.) Dan has stated that if he concentrates on breathing, he can control to some degree his noises, Also, when he has taken time out to just read and get his mind / brain active he has improved. This is why i mentioned that if he finds this helps, he needs to recognize that this will help him and put into action. When we explained this today, it was rubbished. Apparently we just found out that Dan and mum were being watched in the waiting room and were filmed before the consultant! I will keep looking at this forum for some good advice on things we can put in place to help him, its so difficult for the other siblings at the moment as they find it quite disturbing. Hopefully he will 'grow' out of it sometime.

Hi Just found this forum and am very grateful to find others going through the same issues as my son. Dan is 12 and has suffered from both vocal and muscular tics for some time now. He has recently got worse however, they diminish and return over a period of 1 month at a time. We have just been refered to CAMHS (Children and Adolescent mental health services) and had our first meeting today. WHAT A NIGHTMARE!!!!! I was not able to attend due to work committments, this was critisized despite the fact that my wife expalined that we took the first appointment avaialble to get advice and help underway as soon as possible. The wife came away feeling that the !!!!!'specialist'!!!! was putting all the blame on her and myself and told us that is just the way Dan is and we should learn to live with it!!. I feel this is just a total cop out on their behalf. What we wanted was for some advice on how Dan can recognise when he is getting worse and what factors / stresses make things worse. I Did not expect a 'blame the parents culture'! I feel like it was a complete waste of time and wish i had been there to tell them that. Dan is a very bright lad who is doing very well at school, i do feel that he needs to put the effort in trying to control and recognise the triggers and feel he is capable of this. He has a bit of a chipm on his shoulder as most teenagers do, however he is bright enough to make the effort (or am i going about this the wrong way?) At the moment his tics are vocal noises and mild twitches. We were advised by a specialist some years ago that this is normal for children and that they will eventually grow out of it. That specialist recommended Dan leaves the room and reads out loud to himself to try and control the noises. Any advice / recommendations would be really appreciated.

Hi Just found this forum and am very grateful to find others going through the same issues as my son. Dan is 12 and has suffered from both vocal and muscular tics for some time now. He has recently got worse however, they diminish and return over a period of 1 month at a time. We have just been refered to CAMHS (Children and Adolescent mental health services) and had our first meeting today. WHAT A NIGHTMARE!!!!! I was not able to attend due to work committments, this was critisized despite the fact that my wife expalined that we took the first appointment avaialble to get advice and help underway as soon as possible. The wife came away feeling that the !!!!!'specialist'!!!! was putting all the blame on her and myself and told us that is just the way Dan is and we should learn to live with it!!. I feel this is just a total cop out on their behalf. What we wanted was for some advice on how Dan can recognise when he is getting worse and what factors / stresses make things worse. I Did not expect a 'blame the parents culture'! I feel like it was a complete waste of time and wish i had been there to tell them that. Dan is a very bright lad who is doing very well at school, i do feel that he needs to put the effort in trying to control and recognise the triggers and feel he is capable of this. He has a bit of a chipm on his shoulder as most teenagers do, however he is bright enough to make the effort (or am i going about this the wrong way?) At the moment his tics are vocal noises and mild twitches. We were advised by a specialist some years ago that this is normal for children and that they will eventually grow out of it. That specialist recommended Dan leaves the room and reads out loud to himself to try and control the noises. Any advice / recommendations would be really appreciated.