amyg

Here is where I found some info about the gluten & tics. It was actually from Caryn's site! http://healthy-family.org/caryn/704 Here is another: http://www.celiac.com/gluten-free/index.php?showtopic=19280

Amy those are a problem!! they have a bunch of artificial things in them including the dye and flavoring which are known to be tic triggers for most kids. Caryn will have lots of info for you re the gluten induced tics in those with celiac disease Thanks Chemar! They will be in the trash tonight!

To everyone who has replied to my post THANK YOU! I wanted to answer a few questions that were asked, and see if anyone had any furter suggestions. His tics do seem to be more frequent under stress or excitement. We have kept the TV and games completely OFF today, and they have not been that bad, still there, but not nearly as bad. Which, in and of itself is an epiphany to me! We do not have any "diagnosed" family history of Tourettes, but I do have to say that my mother-in-law does have an obvious tic of clearing her throat, and she has for a long time. Although, she HAS been clinically diagnosed with Celiac. And I have read some articles about tics being a side-effect of gluten being in their diet. We do not have him on any special supplements, just your basic Flintstones vitamins. I did go to our local bookstore to get the book by Sheila Rogers, but unfortunely, they didn't have it in stock. I will have to order it online. If anyone has any suggestions on a course of action, please let me know. At this point I'm not sure if I should read the book first and try that, or if I should go ahead and make an appt. with a pediatric neurologist, or if I should do both!? Again, thank you all for your posts! You guys are such wonderful advocates for your kids! Way to go! Amy (lvmy2boysinTN)

Hello, First I have to say I am so glad I have found this site! But I will get straight to the point. I have a son who will turn 8 in just a matter of days. Over the last 2-3 days we have been dealing with yet another of his "tics" ( we don't know what else to call them at this point). He can't seem to stop doing them, even though we have tried everything we can think of-from asking him about them (i.e. "why are you doing that?", "can you stop doing it?", "do you think something bad is going to happen if you don't do it?"), and now we are taking the approach that if we ignore it, will it go away? So, let me give a little history: we have noticed these tics for about 3 years now. They seemed to have started off mild and very sporadic, but are progressively getting worse. The very first "tic" we ever noticed was an obsession about pointing his "bad finger" ( a classmate had made it known there was such a thing )-he was terrified he was going to point it! He absolutely flipped out on me that day! Well, after that first episode it hasn't stopped. We have dealt with him saying "I think" after everything, on to strange eye blinking and rolling, "shrugging" shoulders, head "rolling", throat clearing, AND NOW...grimacing of the face, almost a stretch out of the bottom lip kind of thing, along with curling of fingers and "frozen" posture. Each episode can last anywhere from 1 week to 1 month. Then he will go a little while with nothing, and then he starts another tic. When he does tic, it consumes his day. Watching TV, eating, reading a book, playing, and even in his sports. I am heartbroken that my little man is having to deal with this "stuff" in his mind. The more I research, the more it sounds like Tourettes. Could someone please help me and give any advice on whether it may be Tourettes or something else? And what steps I can take to get him some help! P.S. I have mentioned it to his pediatrician, and he just mentioned "maybe mild OCD", but I think it's deeper than that. Thanks! Amy (lvmy2boysinTN)