Hello Everyone!
What a great forum. I've been doing research with my pediatrician for the last two years re: PANDAS, tics, auto-immune. My son was dx'd in January 2007. Usual story- school troubles, anxiety, tics, OCD behaviors. The only thing that really keeps the tics and behavior under control is Augmentin BID. I have him on fish oils, Amino Acids, Magnesium, D-3, Kirkman's Super Nu Thera mulit-vitamins, Calcium and melatonin so he can sleep at night, Mag Sulfate cream, Mindlinx, Three-Lac, and digestive enzymes.
Basically, his gut is a mess. The last stool report came back +3 yeast, bowel inflammation, pathogenic bacteria (even on Augmentin), and low pancreatic output (duh). I was all convinced that I needed to wean him off the Augmentin- it's been 2 years non-stop except for short trials of a week or less. Thought I had it all figured out; weaning him off slowly was going to do the trick. So last Friday (5 days ago) I dropped his dose by 1 ml both in AM and PM. Within 2 days I started noticing him blinking. Tonight he was eye rolling and blinking as he became more tired. I AM SO FRUSTRATED! (sorry).
Has anyone had this experience? I can't take him off the Augmentin without all kinds of tics and behavior issues starting up. What's the secret? I know that we are still trying to detox his mercury levels (very high) and I'm wondering if this is interfering or affecting the tics. His diet is so good. No wheat, dairy, or eggs. Limited sugar. Eats a lot of fruit tho'.
I'm looking for someone who could shed some light on the anti-biotic "addiction".
Thanks so much for your time,
Scrapmaxx