michellel

Thanks! I think that sounds like a good plan, although I'm not looking forward to doing a throat culture on my younger son. Michelle

Hi! Thanks for your response! My son did have a high fever and sore throat about 1.5 years ago, but unfortunately I did not take him into the doctor because the sore throat disappeared in about 24 hours. He has not had a throat culture in quite a while, so thanks for mentioning that. I wish I had done that before he took the Amoxicillan. My son's most noticeable symptoms are his tics, but he definitely is more emotional and anxious than he used to be. I wouldn't quite say he has OCD, but he has picked up some other weird behaviors which just come out once in a while (ie: a jump when a door closes) . We actually have a dentist appointment tomorrow, so I'll see if his tics increase after the cleaning. I was pretty happy that the neurologist knew about PANDAS and suggested testing the titers, since my pediatrician was no help at all. Is there a different type of doctor I should be seeing? BTW - I'm in CA about 1 hour south of San Francisco. Thanks again! Michelle

Hi everyone, I'm new here and was hoping to get some advice. My 10 year old son has been having tics for about 9 months now (mostly humming, throat clearing, coughing). I took him to a pediatric neurologist, who recommended tests for ANTI-DNASE and ASO titers, which both came back high. His ANTI-DNASE was 340 (ref <=170), and his ASO titer was 168 (ref < 150). The neurologist recommended that he take Amoxicillan 3x a day for 10 days. My son finished that on Monday. For the past few weeks (before and during the antibiotic) his tics had been on the milder side. However starting on Wednesday, they have returned to a moderate range. My question is: The 10 days of Amoxicillan obviously didn't cure the tics. Should I ask the neurologist if we could try a different antibiotic (Azithromycin?) or does anyone have any other suggestions? I've tried eliminating milk, wheat, TV, and video games for periods of time with no obvious effect. I've also tried some supplements like enzymes, probiotics, multivitamins, vitamin C, and magnesium, which also did not have an obvious effect. Currently, we just minimize dairy and wheat and eat a healthy diet. Thanks in advance for any suggestions! I am just heartsick thinking about antibodies attacking his brain. BTW, his younger brother is on the autism spectrum. Thanks again! Michelle