curiousmom

Hi Michele, He is an MD. He has found good results with PANDAS and 5HTP. She isn't taking the antibiotics now, just the 5HTP. Since the increase to 50mg. I see a decrease in her throat clearing too. The 5HTP is taken at night, it has a calming effect. From what I've read it is used to lessen anxiety. What I am really happy about is that he is a Dr. "in the know" about these disorders, and we are really lucky he has been our Dr. for 7 years, way before this even developed. I am sure there are many Dr.s out there who won't go the more natural route and go for heavy prescribtions right off the bat.

Hi Michele - We had our meeting and he increased the 5htp to 50mg from the 25mg she was on. He wants to see her in 3 mos. and then he will do another blood test. If we see her symptoms getting stronger, then we need to bring her in for another strep test. Her ocd behavoir isn't getting in the way of anything as far as I can see. In the meantime, l will be watching closely to see if the increase in the 5htp is helping.

We are bringing our daughter in tonight for a follow up visit after she was on the 10 days of zithromax and the 5htp. I'm not sure if I see a real difference in her symptoms. I see she has stopped the blinking (very glad about that!), but she still obsessively worries about things she shouldn't be worrying about, and still clears her throat a lot. She also still has her ritual of checking her toes for lint the minute she comes home from being outside (she's done this since she was about 3). I'm not exactly sure what I should be looking for, is it gradual, or do the symptoms, just stop all at once? Thanks!

Sorry to hear you are talking to deaf ears. I don't know where you live, but perhaps you can call the best pediatric care hospital near or not too far from you, and ask to speak with a few of the nurses. They may be able to guide you. Good luck.

I had a real hard time with our dr. at 1st, we kept getting our messages confused. We finally met with him in person and he was very receptive and knowledgeable about PANDAS. If you don't think your Dr. would be, is it possible for you to find a new pediatrician who is more receptive to you and your daughter that could give her the proper blood tests to determine that she has PANDAS?

We didn't try to get any RX for our daughter. We never heard of PANDAS until I mentioned she had strep often and had heard that there was a correlation with OCD's. The Dr. is the one who recommended the Zith from the start, but I am still curious if others have used the 5HTP which he also prescribed.

In additon to the 10 days of zithromax our dr. prescribed 25mg of 5-HTP. Has anyone else seen this prescribed? Our daughter is 9. Thanks -

Thank you. Yes we are fortunate to have a progressive Dr. I will be taking our daughter for a follow up in 2 weeks, and then she will get another blood test to see where her levels are. I don't see her blinking as much. I'm wondering though... one of the symptons she exhibits is worrying about all types of stuff. I can't see that type of symptom being cut off cold turkey, more of a gradual change that may take awhile to ease itself away.

Thanks for the info. She was prescribed prevacid by her dr. This seems to work well for her. She needs to avoid spicy greasy, oily, foods like pizza, citrus, and apple juice.I am going to mention our daughter's PANDA to the dr. next time we go for her check up. Any tips would be welcomed.

Our 8 year old daughter was recently diagnosed with PANDA. Our 7 year old daughter had blood tests which indicated a chance of Chrone's. Both girls had frequent bouts of strep when they were very young. I'm wondering if the 7 year olds stomach problems are tied to the strep she had when she was younger? She does not have any of the OCD behavior exhibited by our 8 year old.

Our 8 year old daughter's dr. just prescribed her with zithromax and 25mg of 5-HTP each night for 2 weeks. It's been one week, and I have not seen any huge change in her behavior. I took her to our dr. after she began out of the blue exhibiting ocdish behavior, blinking, joint cracking, separation fears. The blood sample he took showed an elevated level of (???) triple the norm which lead to the PANDA diagnosis. Has anyone else heard of the combination of 5-HTP and the Zithromax? About how long after the rx treatment began did you see changes? Thanks!