Jump to content
ACN Latitudes Forums

oceanperiwinkle

Members
  • Posts

    5
  • Joined

  • Last visited

oceanperiwinkle's Achievements

  1. I feel your pain. Clothing sensitivity was actually the first symptom that my daughter exhibited...followed in subsequent years with ocd/tic issues. I have found that distraction while dressing works best for us. Talking to her about something, watching TV (if that doesn't bother her), etc. while dressing. Also, sticking to a routine every morning helps her feel more in control. Our routine this school year, involves "warming" her clothes in the dryer before dressing. She loves the way the warmth feels and I think it helps her to fixate on something other than how "uncomfortable" her clothes are. Best of luck!
  2. Thank you for all this information . I have to admit I am a bit confused but am willing to look into all of this!
  3. I am assuming it was fifth disease because other children in her class had it or at least their moms thought they had it (?). BTW..my daughter's tic has REALLY subsided since breaking out in the rash. I believe when they get the rash this indicates that the virus is leaving the system.
  4. Thank you all for your information. Curiously my husband and his sister suffer from the "can't take a deep enough breath" thing. I will look into the Magnesium deficiency. I am such a Newbie when it comes to supplements and the like. Its all so much to sort out ....I guess what I need to do now is find a doc who can help me find out if my daughter has OCD/TS which is aggravated by viruses or if the viruses bring on these behaviors.
  5. Hello! I am new to the board and will try to be brief with my questions/situation. I have an almost 7 yr old daughter who started with "symptoms" (hoarding, dressing issues, extreme fears) at 3 yrs old shortly after starting preschool. She had strep twice during that year. I brought the idea of PANDAS up to my pediatrician but was shot down and so she was not tested. Since then, every year, she has struggled with periods of OCD-like behaviors (fixation on breathing, frequent urination, fixation on getting her clothes/seatbelt/shoes just right). The behaviors vary and really only flare up once a year for a period of about a month or two. My husband and I kept thinking it might be PANDAS because her flare ups seemed to be around the times when she was also sick. However, rapid strep tests showed no strep so we didn't push for blood work. Then about 3 weeks ago, she started with a tic (clearing of the throat and some uncontrollable noises-sort of like humming). I asked her to stop as this was a new behavior for her and seemed to come out of nowhere but she said she couldn't. It got pretty bad (although controlled somewhat at school) and was coupled with her feeling as though she couldn't get a deep enough breath. Then yesterday, she broke out in a rash which was from Fifth Disease. I read that Fifth Disease can stay be in your system 3 weeks before the rash appears. It was then I had an A-HA moment and thought maybe her OCD was related to viruses in addition to or instead of strep. I am just starting to read about PITANDS. Some other info about my daughter: no learning disabilities-tested as gifted, becomes surly/moody when dealing with her flare ups otherwise happy and outgoing, brief stint with OT for sensory integration disorder to help deal with clothing thing although I am convinced it is more OCD vs. SID, pediatrician is of no help. Of course, I have a million questions but a few are: Is there a test for PITANDS? Where should I start with all of this? New pediatrician? Psychiatrist? Neurologist? We are in GA. Can someone have PANDAS and have rapid strep tests be negative? Does this sound like OCD/TS not related to PANDAS or PITANDS to anyone? Thanks for any input you may have. This seems like a wonderful site and I am so glad I found it!
×
×
  • Create New...