Hi everyone,
I'm looking for a PANDAS doctor in Southern California who will treat adult patients and is willing to prescribe PEX, CellCept, Immuran, Rituximab, Prednisone, in addition to IVIG and antibiotics.
I'm new here. 31 year old man who fell ill with an upper respiratory infection December 2016. I recovered from the acute phase, but a set of debilitating symptoms followed:
Anxiety / depression / irritability
Physical fatigue and low stamina
Physical weakness and malaise
Increased heart rate on standing and walking
Chest pain
Breathlessness w/ exertion
Dizziness / lightheadedness on standing
Cognitive dysfunction
Light sleep
I have been on IVIG for 4 months at increasing dosages (up to 105g now) with some good improvement. I am also taking 5mg of LDN and many supplements.
The chest pain is 99% gone, I can drive, walk 2-3.5k steps a day, have less malaise, and cognitive dysfunction. However I am still unable to return to work so I'm looking for a doctor who can help me continue my healing with second line treatments.
Relevant lab findings
Type
Component
Reference Range
Value
Cytokines
IL-6
0 - 5
80
IFN-y
0 - 5
40
TNFa
<=22
58
Metabolites
Pyruvate
2/8/17: <= 6.4; 6/8/17: 7-32
15.9
Cis-Aconitate
2/8/17: 18 - 78; 6/8/17: 10-36
<DL
Isocitrate
2/8/17: 39 - 143; 6/8/17: 22-65
13
Auto Antibodies
Anti alpha-1-adrenergic antibodies
<7.0 U/ml: negative
10
Anti-muscarinic cholinergic receptor 4 antibodies
5.0-7.0 U/ml: at risk
6.9
Intrinsic Factor antibodies
0.1-1.2
1.19
Myocardial Peptide antibodies
0.1-1.5
1.89
Thyroid Peroxidase antibodies
0.1-1.3
1.4
Thyroglobulin
<=1.0 U/ml
6
Thyroid Peroxide antibodies
<9 IU/ml
15
Anti-Dopamine Receptor D1
500-2,000
1:32,000
Anti-Dopamine Receptor D2L
2,000-8,000
1:32,000
Anti-Lysoganglioside GM1
80-320
1:1,280
Anti-Tubulin
250-1,000
1:16,000
CaM Kinase II
53-130
130
Rheumatoid Factor IGM
>6
11
Pathogens
Coxsackie B4 virus
<1:10
1:640
Mycoplasma pneumoniae IgM
<770 U/mL
1327
Yeast
None, rare, few
Many
DNSB 0050220 (Strep)
< 260 U/mL
268
`
Immunological
Natural killer cells functional
7-125 LU30
9
