Getwellsoon
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Doctors we have seen who helped with PANDAS
Getwellsoon replied to T_Mom's topic in PANS / PANDAS (Lyme included)
Has anyone been to Dr. Latimer recently? (2016-17) -
Pandas - When to move on to IVIG after trying Augmentin?
Getwellsoon replied to MC2's topic in PANS / PANDAS (Lyme included)
We were about to start treatment for PANDAS and got back an Igenex lab that showed equivocal for Bergdorfi Lyme plus what they call "the dinosaur bones", but not the other typical tic co-infections. My d has been suffering horribly from the PANDAS symptoms and has never really had the traditional body complaints that you hear about with Lyme. I really want to move forward to resolve some of the PANDAS symptoms, perhaps IVIG or plasmapheresis, as she has suffered for years with the eating and ocd issues especially. We cannot get her to take pretty much any medicine for this by mouth as well. Can we treat the Pandas as primary and the Lyme secondary given the symptoms seem much more lined up with PANDAS? Labs showed antibodies for about six things associated with PANS/PANDAS btw.