Hi Hannah and Amy,
we are based in the East of England, our 7 year old son has all the hall marks of Pandas, the snorting, shaking head and recently rolling eyes. Unfortunately we haven't been able to get a firm diagnosis despite seeing several specialists. We also use supplements such as Eskimo Fish Oils but the results have not been at all conclusive. His head movements have become violent at times and recently worsened, with a new eye flinch which is preventing him from getting to sleep at night.
I was recently reading on some other posts in this forum people talking about certain triggers to this condition, like strep (he has grommets for his ears) but also triggers through allergies. So taking another posters advice we have tried him on some over the counter "Hayfever and Allergy Relief" Boots own brand tablets, just one a day. Well two days into the course and we have seen a dramatic improvement, something we simply haven't seen before.
Its been such a worry for us with little or no medical help to speak of, and he has had this for nearly a year now.
It's very early days of course. But if all this means is we have some small control over his involuntary head movements then I am thrilled.
Just thought I would share this helpful bit of advice with you. Who knows, maybe it can help some one else too.
Smokey
