marazion

Hi, I'm new on here and wanted to introduce myself. I live in Germany and my daughter started having tics at 3 or 4 yrs. It started with some eye blinking, then waxed and waned, clearing throat, sniffing, shrugging shoulders, then got more complex so we had some bending down and funny walking tics at the beginning of the year at 7yoa. We also realized that she wasn't just being a tidy girl but went through phases with obsessive compulsive behaviour like putting things right but also touching hot things like light bulbs, pots and pans (ouch!). She also has had to repeat tics til they felt right or a certain amount of times. We were sent to see a neurologist in june because of eye rolling tic and staring spells. Eeg was normal, the 24 hr one we don't know yet. The neurologist isn't expecting anything from it, just making sure. She believes it's TS. We saw a wonderful psychologist, who also believes it's TS. She was ever so good with my daughter and wants to do more diagnostics to see where she needs some support and would like to see about habit reversal training. On Wednesday we will be going to see a TS specialist 2 1/2 hrs from here. I m very about it, we have been waiting since May. My daughter has always been much better in the summer, in fact we used to think tics had vanished over the summer. I m pretty sure now that we just failed to notice because we weren't as focused then. Last year around easter we thought it had all gone. She started school, the world was good until after half term when tics started flaring up again. What is it that makes her better in the summer? At the moment things are pretty calm, so one but me and my husband and herself notice her ticcing. She doesn't want to hear anything about it. She denies having tics, comes up with all sorts of excuses (that nobody asked for) is getting good at hiding them (which is a helpful skill) and just wants to pretend they're not here (I can so feel for her there). Do other kids do that as well? I know this is long...I just feel so comfortable writing on here because from what I have read people on here understand what it's like, unlike people around us, who try, but they don't. I have quite a few things mapped out to have my daughter checked upon (like hpu, nutritional defiencies, food allergies, heavy metal and lyme) after the appointment this week. And I would be glad to share and get some advice! One more question: do a lot of TS kids have hypersensitivity issues? Mine is struggling heavily with different aspects of clothing and has hypersensitive smell, hearing, seeing and emotions! Bye for now, thanks for letting me pour some out ;-)

Hello smcdow6, my daughter aged 7, also has these vision changes! She first told me a few days ago, she said that objects further away would have the wrong colour, like blue or red trees and that the colours would change into what they should be as the objects get closer. She doesn't have eye blinking or eye rolling tics at the moment. She is not on any medication other than homeopathic one. I am absolutely relieved to have stumbled upon this forum, as it seems that there are a lot of parents here in the exact same situation as we are. Greetings from Germany. Bye for now ;-)