Hi there, I just joined this forum specifically to respond to you. I'm working on creating a blog about our PANDAS journey and help any moms I can...like us all, I'm sickened by the lack of knowledge, help and empathy on the doctors' end, and your post really affected me because I was also fearful of long term affects of abx. When things got really bad for us, we moved past the other doctors we were dealing with and found ourselves in front of a knowledgeable neurologist who suggested we start IVIG right away. While it did take a good 2 months to see full/optimal results, we are so glad we did! Is this something you have read about and/or discussed with your doctors or a neurologist? I know that insurance doesn't always cover it so that is obviously a huge factor, too...but I just wanted to make sure you'd heard of it and know that I can answer any questions or concerns you may have about it as we are now big fans. And my apologies if you have mentioned IVIG in other posts, I only had the time right now to read your post from today and wanted to reply right away!
