Hi Brett,
I have been reading your story and didn’t get chance to post due to my recent work schedule. I totally understand your feeling. It is heart breaking. My son (currently 9 years old, a 4th grader) has been on homeopathic remedies for 2 years. The remedy definitely helped him. He’s been taking UNDA numbered remedies. However, homeopathic is not covered by insurance. I’m not familiar with PANDAS, so I can’t give much suggestion for it. In my son’s case, I believe that heavy metals (in particular mercury) are the major contributors to his tics. He also has much nutrition deficiency. Currently, besides the “natural chelating” vitamin program monitored by our DAN doctor, he also takes the remedies to help his body detox at the same time. For my son, TV, computer, electronic games, bright light, some sports and excitement are triggers for his tics. It’s really a trial and learning process. I would suggest taking small step at a time. Don’t try making too many changes at the same time. It’ll add more stress to the kid. My son is a very sensitive child. We had very difficult time to start the vitamin program in the beginning. Due to his adverse reactions, we had to stop the supplements many times in the middle and restart over from the beginning with small dosage. It takes time to build up. Although it is a lot of work and the road is not easy, there is a hope. Please hanging there…and don’t be hesitating to ask questions!
Wish you the best!