Pandacubmomma

Our child(a bit younger at age 71/2) loses ground with reading when he is in a flare. I am learning to seize the moments when he is well. He reads effortlessly and I see progress during "normal periods." During the flares it is hard to know if I should push him to read as it seems so difficult for him and there is much complaint of exhaustion and emotional resistance. As he is younger and was never as far ahead with reading as your child, it is deeply upsetting to watch him progress and go backwards when he has a flare. It amounts to him being below grade level in reading, though he has high verbal intelligence, loves to read when feeling well and a history of being read to extensively.

Interestingly, the new PANDAS clinic in Arizona is actually called "Postinfectious Autoimmune Encephalopathy (PAE)" clinic. Link is here. We have filled out paperwork at this clinic as it is the closest comprehensive clinic to San Diego. http://peds.arizona.edu/steele/cpae

Dr. Mae kinaly is amazing w my pandas lyme 7 yr old. She is in southern california but can do phone visits after initials