Pipin my 6 year old daughter has the same thing. She has epilepsy and was given medication that I think caused this to happen. Sunglasses outside used to help but any light now seems to bother her. Sometimes in public or outside when I can't control the lights she can't even use the restroom by herself because it gets so bad. It is hard everyday for her. She is afraid to go outside. Her neuro has tried a few medications but they make it worse. I am glad there is someone to talk to about this although I am sure we would be happier to never have to talk about it again. I am planning on taking her to a neurologist that specializes in movement disorders specifically. I hope I find some solution to this and I would be happy to share if I find one. It would be nice if she could go outside and run again. If anyone has suggestions I would be so glad to take them. Good luck everyone
