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AllieMood

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  1. Has anyone found that penicillin did not work/made things worse? Is this possible? Or could there be something unknown going on? My daughter (6) was able to move quickly out of her symptoms on ammoxicillin twice over the past year, last relapse she took a zpak and I felt like she was 80 percent better (two weeks ago). We started penicillin (long term for a year) two days after a zpak under care of pediatrician, and I feel like she is regressing all of the sudden (day 4 now of penicillin) --- didn't sleep last night, fear of shots and needles tonight before bed, worries, I am also seeing some tics slowly come on... Set an apt to see dr latimer in April (first available)
  2. lw47 and Mama2Alex, Thank you for your response. Sorry for my typos in original, I was headed in to her school to meet with her teacher, who wrote us last week to say "her behavior isn't normal, I'm worried." We are hankful for a kindergarten teacher who notices this behavior (a silver lining). She stayed home from school last week because she was scared and inconsolable. I would love to find someone nearby that I can meet with regularly. How do I find these doctors? I have been on the phone for hours, and even went to the medical university where a "pandas preferred doctor" was listed, only to be turned away. I fear I downplayed her symptoms in my original post. I see there is a doctor, O'Conner in Charlotte NC. 3 hour assessment is $1,000 dollars. Is this normal? Will I leave with answers and treatment options? I know I am new to this network, so I will take any advice, input, words I can get- because I feel completely helpless. I want my baby back. I don't want her to be in pain and in fear, and with each episode I am getting more and more fearful that SHE won't ever be free again.
  3. Hello! I need suggestions for a doctor in SC or NC, or nearby (willing to drive anywhere)! We are in our 4th episode. First two episodes successfully treated with antibiotics (first ped told me it was behavioral issues, begged my second pediatrician to give her antibiotics after hearing of pandas---doc agreed when she failed a strep test and then was given 10day round of antibiotics which worked twice). Next episode didn't ever seem to fully clear up. All of these episodes were marked by tics (hand licking, throat clearing, and fears/anxieties). This episode very different, and not clearing up after just finishing zpak. I believe this episode was sparked by the flu most vaccine (I had NO idea this was not a good idea)! Received vaccine Thursday, symptoms showed up next day. Symptoms this time- separation anxiety, ADD type behavior, outbursts, chocking while wasting, saying awful things like. "I'm so horrible. I'm a terrible person." I am torn apart and heartbroken for my sweet girl, especially seeing this round of antibiotics is not working. What next? What do I do? Any doctor suggestions near me?
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