Hello everyone,
I am new to this site. Recently I have returned to the internet in search of information about Tourette's and ADHD. My son was diagnosed with both when he was 8 years old (2012). We did not put him on any medication at that time fearing the listed side affects. The tics got progressively worse as he got older. They were at their worst when we tried medications for his ADHD (Strattera) when he was 10 year old (2014). We discontinued the ADHD medications and concentrated more on easing his tics. We tried several different medications (including Orap) which did not help. We also tried Nudexta which seemed to help but was a very expensive medication since it was not covered by our insurance ($500 for a 2 week dose). Our Dr. suggested we try an over the counter cough medication (Delsym) since it had the same active ingredient (Dextromethorphan)
as the Nudexta. We started my son on a low dose and slowly increased the dosage to 2.5 mg morning and evening. We noticed my sons tics easing up. He took the Deslym for a year and a half. His tics were nearly gone. My son is now 13 years old and his tics seemed to be well managed so we took him off the Deslym. He's been off the Delsym for about a month and a half.
Since the tics seemed under control we decided to address the ADHD issue. We started him on Concerta (18mg). His tics have now seemed to have increased slightly however his focus has improved according to his teachers. We (Dr, Teachers and parents) are all monitoring any changes. We are all hopeful that his tics will not worsen and his focus will continue to improve.
I hope this post is helpful.
