Aerose91

Dcmom- Prozac is used pretty frequently for stabilizing mood, they even gave it to me when I first got encephalopathy because they thought I was psychiatric. It did stabilize me slightly but not much, as an infection was my problem. It would make sense that it wouldn't do much for ocd and obsessive thoughts as those are anxiety based and Prozac doesn't touch the GABA/glutamate balance. However, it was pretty unceremonious when I tapered off it which was a huge victory considering how sensitive I am to medications. So overall, Prozac seemed pretty safe. I really hope the best for your daughters as this condition is pretty brutal, and obsessive thoughts are awful. I hope she finds a solution soon

Thank you

Hi Trinity, I'd like to add my .02 here as I'm an adult (30) who has had intrusive thoughts, OCD and anxiety to extreme levels. I had it from ativan withdrawal- I was put on benzos for 2 weeks to counter thyroid medication and then cold turkey'd off. I spun into the 7th circle of and the damage from the benzos is what led me into encephalopathy and AI issues, etc. First off, I want to say that I feel very sympathetic for your daughter. The intrusive thoughts and OCD tend to go hand in hand a lot of times and they are awful, purely awful. There were times when I would be. ruled up in a ball in my room for days on end because I couldn't get it to stop so she really is a trooper. From my knowledge of this it's that OCD, intrusive thoughts and many other things are all symptoms or variations of anxiety and this is usually caused by an excess of glutamate. I'm not a huge proponent of heavy psych meds, especially ones that can change a person's brain chemistry (benzos) while your daughter is still young. The thing that worked best for me to take the edge off a little, if even slightly was l-Theanine. Its very safe and is a precursor to GABA in your brain. I have also seen people have some success with SSRIs, especially since I believe they are easier and safer to come off of in the future. The one thing you can't avoid with this topic is benzos. I will say this- they are definitely effective but there's a reason they are designed to not be used for more than 2 weeks at a time, ever. They're a once in a while, as needed for o occasional acute anxiety pill. Also, klonopin and valium are typically safer than xanax and ativan as they have a much longer half life. Xanax is very fast acting but can give nasty rebound effects the next day. I really hope your daughter has resolution to this soon and it's commendable that you are being understanding and trying to find solutions for her. I'm not sure if any of this helped but I thought it may help to hear an adults perspective on going through the same thing. Best of luck to you guys.

Hello, This is my first post here and I was wondering if I could ask for some help in interpreting my Cunningham Panel results. I won't get deep into my medical history but I've been in complete for 3 years since having encephalitis. I have been diagnosed with ME and my SPECT shows massive hypoperfusion and inflammation in my brain. Just recently did my doctor finally find Bartonella and Chlymadia Pneumonia in my brain but also thought that many of my symptoms could indicate and autoimmune process against dopamine receptors. I can't afford to see him again for a while so I was hoping someone here may be more versed in this stuff than me Results: DRD1: Normal Range: 500-2,000 My Number: 2,000 DRD2L: Normal Range: 2,000-8,000 My Number: 8,000 CaM KII: Normal Range: 53-130 My Number: 127 Lyso-GM1: Normal Range: 80-320 My Number: 160 TUB: Normal Range: 250-1,000 My Number: 250 Obviously I'm ok with the last 3 but the dopamine receptor markers are at the very highest they can be before my being considered out of range. I'm not sure if this means I may be at the beginning of an autoimmune process or if it's considered safe. I don't necessarily consider a test normal if the number comes in at the very very highest end of acceptable but I'm not familiar with this particular test. I'm also not sure if having multiple, chronic infections in my brain may influence them, either. Thank you for any help