Vanessa2

I just read another post which mentioned dealing or not not dealing well with their child's tic. I admit, I don't believe I deal very well and wish I could find a more positive outlook. So, if anyone is interested in posting their thoughts positive or not... Maybe it would give some of us struggling parents a different perspective. thx

yes, thank you. Actually on hold now with my fingers crossed hoping they still have the sample. P.Mom, they no longer have the blood. I understand that PANDA's is complicated for various reasons. Seeing that his ASO Titre was high is it necessary to get the AntiDNAase B done as well?

yes, thank you. Actually on hold now with my fingers crossed hoping they still have the sample.

Vanessa..... As you probably read..that ASO is high and indicative of a strep infection (diagnosed or not)...but, what I reaaly wanted to tell you is that the other test you mentioned is called an Anti-double stranded DNA test....it is NOT the test you should have done to test for strep antibodies....that test is called the AntiDNAase B titer.....they are easily confused...make sure you get the correct one. Yes! i noticed that too and i was thinking it didn't look right. Thats so frustrating I know it was written correctly in the req' so the lab totally made a mistake.

So, long story short. My 8 yr old son started ticcing when he was 5 1\2. I usually read the tourettes board and i apologize if the answer to my question is somewhere in previous posts. Does anyone have any idea how to read this and or what it means? For his blood Anti-ds DNA 37.2 (up to 200.0) IU/ml and his ASO titre 242 HI (should be < 65) IU/ml. Any help would be greatly appreciated. thank you Vanessa

Hi Mylittleangle I PM'd you a few days wondering if you could send me the info for the TMJ specialist in our city. Stms i think my PM's dont go through. thx!

I too have been curious about stem cells. I haven't come across stem cells for tics though.

Yes, Dr. Stack was world renowned...

Is oscilloccocinum a homeopathic remedy? thx

I had a friend of mine pass the case study and a video on to her dentist. I believe he is a craniodontist...in Canada. He said he has known Dr. Stacks for many years and has had some course with him. He is world renowned about his approaches to TMJ and overall health has witnessed many videos about the improvement his patients have had. I also spoke breifly to the neuroscientist. He said the paper did grab his attention and that the neurophysiology behind it is accurate. I am still waiting to hear back from neuroanatomy prof from the chiropractic college.

mylittleangel i am sorry to hear this. i dont know if this helps and i dont know how severe your sons tics are but what we do sometimes in between all of the different alternatives we try, we take a Break... In the end i just want my boy to be a little boy and not always have the focus on his tics. that might mean not saying "STOP, you cant eat THAT!". It also means for me taking a break from searching and looking for answers. That way we can focus on family time and not just tics. Again, i am sorry about that. I dont think this means to give up hope on this theory but unfortunately it seems as though it is in the early stages of development. hugs V

you might consider supplementing Ca, Mg, Vit D supplement. A side note to consider, i was off dairy and using all the box alternatives..almond, rice even a quinoa\rice mix. What I realized is unless it is a cardbord milk container the box containers that do not have to be refrigerated are lined with plastic. Not good if you are trying to avoid BPA's... i went back to milk, i guess its a trade off.

mylittleangel before considering having the device permantely inserted. Your son is still young in terms of his jaw growth according to this theory. Maybe you could ask Dr. Sims at your next visit what he thinks about giving your son time to mature a bit so he is more aware and can consciously bite down correctly.

Faith i think you are awsome for considering all those questions. I have to agree that they are questions that are important and most certainly the answers are unknown, most likely because there is no research. What would happen if we "messed" around with the jaw? I also wanted to let those interested know that the pilot study article is going to be reviewed by an anatomy and neuroanatomy prof at the chiropractic college in my city. He is a chiropractor,BSc, Msc and a Phd. He taught me and he is outstanding in his fields. He said he would get back some time next week. As well the paper is in the hands of one of my collegues and also a neuroscientist Phd. hang in there and i will try to do the same!

ok...i have decided to send the Pilot Study to as many professionals i have at my disposal. i was initially going to wait before posting them until i could compile everyones opinions however, it seems as though decisions on whether to book appointments are being made quickly... Below is the opinion from a periodontist who is also a full time prof at the university (Dentistry) where i live. Needless to say, i think i cried all day last week after reading his take on the paper. i am sorry if it upsets anyone but i think its important for us to have a much knowledge as possible. if i recieve any more opinions i will post them. i am currently waiting for two more... Here it is.... First a disclaimer: I have not followed the TMJ/TMD literature closely for some years now. I am not a neurophysiologist or neurologist. I have not researched the most recent work on TS, in particular those that address etiology and treatment outcomes. I an unsure how many Randomized Clinical Trials there are but those should be carefully reviewed. My short note reflects my impression of the single article you had given me (Sims, A. Tourette’s Syndrome: A pilot study for the discontinuance of a movement disorder. J. Cranio.11-18,27(1), 2009. If I were to do a comprehensive review I would start with the Cochrane Collaboration (http://search.cochrane.org/search?q=tourette&restrict=review_abstracts&scso_cochrane_or) A quick look at a paper on Nutrition and TS has been withdrawn - http://www.cochrane.org/reviews/en/info_74...1509502848.html I wonder why? At any rate the paper is a very poorly reported and documented case report. Although the inclusion criteria for the six patients seem well defined there is virtually no reporting of the results and certainly no analysis at all. There are no clearly defined outcome measures. My summer students could not get away with this. The hypothesis for the NCVD to work is based on speculation of neurophysiology that may result (if cross talk really happens) in elimination of noxious stimuli into the CNS via the auriculotemporal nerve and if used in developing children would redirect the child’s growth pattern. These are two huge presumptions that theoretically could work but one wonders whether there is any evidence for them (non presented in the paper). The only good thing about the NCVD is that it is unlikely to do harm because it is non-invasive. As many pseudo-scientific notions aired by poorly trained pretend-scientists this one plays into creating false expectations for patients and their families offering non-invasive method vs unpleasant, complicated and very invasive once – this in itself, in my view is a very “invasive” act because it plays on vulnerable people. Of course, some of these ideas may work and may be proven in time to have good science behind them. After all great ideas come from simple observations (the lowest level of evidence in science). The difference is that real science then sets up hypotheses and test them by well-defined and proven scientific methods. What this paper proposes does not pass the test by which trained health care professionals work: recommending unsubstantiated and unproven treatment equals malpractice, it is unethical and a flagrant violation of the Hippocratic oath. This stands in contrast with non-trained lay people who could recommend treatments that are non-invasive and are unlikely to harm. But than again would you take advise from the unwise? I wish I could say that this is it for little J . But I cannot -again within the limitations of my review outlined in the disclosure.