Anna1970

lurker yes he was sick he was not feeling well about 2 weeks ago! see i dont know what to do my doctor keeps saying it is normal and i know it is not (tics) he will not go into this much with me and as for changing doctors it is hard here i am in Canada and doctors are hard to get where i live if you have on then you need to keep him/her! i have taken all sort of stuff out of his diet and he was doing so good till now! i am so lost right now! Ann

Thanks Chemar the place is free of mold and all the yukky stuff i made sure of that before hand but now you say they prayed around my house a few weeks back for weeds and spiders! maybe that is on of the triggers!! as for my mom wearing perfumes she cant she has COPD and is on Oxygen so none of that around here! i just feel so bad for my son he yell at me i think it is b/c he i am the only one he can vent on he tells me he HATES me and it hurts so bad but i have to understand he has no clue what that even means i was getting very up set with him when he would say it but i have noticed he has been saying this to me when he cant express him self or is upset! he has also been have problems at school thank god it is done soon! he is being teased by the other kids b/c they cant understand him he keeps saying he is ugly b/c this kid has said this to him.... just makes me so angry that he has to go through this i want to keep him home but i know that would not be good for him! on a bright side he has met 2 boys ... they are brothers and he play greats with him he laughs the whole time he is playing with them... they are good boys 5 and 6 years old... i am sorry i am rambling again! Ann

I have not been on here for a while 2 reasons one no internet! 2 my son has been doing really good! UNTIL this past month there has been many changes in his life he is 41/2 yrs old and he does not do well with change to begin with well . We moved , got notice and moved all within 2 weeks! he was doing very good with the move and also another change has been my mother staying with us for a while now! there has been other small changes add up to tons for him! My ? is could his stuttering be a Tic?? he has also been going to the washroom in his pants, not wanting to go to school, i cant do anything without him being right next me ... oh yes he has been SWEATING like crazy i dont know if this is b/c his asthma is bad right now with the heat or what but man the kid has a soaked shirt within 1/2 hour of playing! ok i am done rambling on thanks for listening any advice would be great! Ann

My ds does this also not to the point of swelling but it does get red he will also wipe his nose! i dont know what to tell you just wanted to let you know my son does this too Ann

did your child develope these behaviors rather suddenly? well yes he did it was last spring where i really noticed them we were alking to the store it was a beautiful day out and a walk that usually takes 5 mins turned into 30 there and back , he was walking and stopping with every other step clenching his fist and rolling his toes (found this out when we were home with no shoes one) but he would stop dead even if it was in the middle of the road. about a month or so before this episode i noticed him squinting his eyes while watching tv but his eyes are fine had them checked. through the summer they were not near as bad as now. Ann

Anna, Hi. I just wanted to say that every kid is different. The fact that one kid reacts to red dye, etc., does not mean yours will, or that eliminating these things will help. There are many reasons for tics, your child may not have sensitivities or allergies. Did you get him checked? Especially if your childs behavior is PANDAS related, most likely infection (and remaining high antibody levels), is causing the problem and diet changes, although I agree it can't hurt, may not help at all. Did you have blood work done to check for antibody levels? Is he currently taking an antibiotic? Take care! Kelly I have not had any blood test done as of yet i have a doctors Appointment next week to talk and tell him what i want done no he is not taking antibiotics right now ok i have another question!?? can a child with PANDAS be feeling fine and still have a infection! i tell ya i am so overwhelmed with all the different things! i just thought i would try the basic things right now by taking things away thanks again! i think i should change my name to CONFUSED MOM! Ann

well i was just reading and found out tartrazine is yellow dye!!!! so this may be why i have not saw a improvement! oh wow i really need to know what i am doing!tartrazine is in EVERYTHING!

I took my son off Red Dye 40 and any yellow die, and MSG how long should it take before i see any improvement?? his ticks have not let up at all and it has been a week should i wait long longer or should i have seen some improvements already?? Thanks once again Ann

My son has always had a Problem with personal space, we have been trying to teach him about that, he was doing better with it but the when he gets to excited he will wave his hands in some faces. i feel bad i want to make all this right for him .... he is the most loving child you will ever meet, he is a little rough but i think that is a boy being a boy he is the same as the other boys in his class in that way.. i dont want to sit and think every time he does something out of the norm that it is a tic! i think i am going nuts! Thanks Ann

I went to pick my Son up from school and his teacher told me about my son when he was playing with the other kids they were very excited and he would go up to the other kids anyone whoever was around him and wave his hands in their faces was like he is tickling them but only when he was excited and she said he was doing other tic's right after. so i was wondering if this was yet another tic?? the kids were getting upset with him and didnt want to play no more ( he was not hurting them) was just in their personal space. Thanks Again Ann

This has been over a year and a half for us on this "journey" to help our son. He has had a couple set backs, both major ones due to stress, one was over some bullying plus a terrible move for us, the last one was starting school in Gr 3. He had to deal with a new private school and a bus ride. We have done IgG, standard prick tests as well for allergy, changing his diet to reduce the problem foods, taking away all artificial colors, flavours etc. We also have him on Bonnies Vitamins and have had about 5 visits to a NAET Dr. I don't know what the real reason is for his progress, he is doing very well right now. My biggest problem is having faith that all the prayers and tears I have shed for him are not in vain. I want so bad to believe that we have been led down the right path on our journey, but I still have way too much anxiety thinking the tics will come back. I know they probably will, but I am hoping to a much lesser extent. For today, I will just hug the little guy and tell him how much I love him and how proud I am of him and pray for myself first, to be a good father and caregiver, then pray for him. If I didn't find this board, and spend time and money researching all these leads on what can help him, I feel I would not be doing my job as a parent. Just don't get too obsessed, my biggest mistake/challenge. Let your child be a child. I now let him have a few pieces of "junk food" now and then. We let him watch TV and play his Nintendo on a limited basis, if he tics, so what, they go away and probably no one else knows but me anyways. By the way, where to you live in Canada Ann? We are in Vancouver area. lmcgil Thanks for the advice! i will try and not let this run my life! some told me before that no one see his tic's i am just scared he will get teased i know i can not protect him from that and kids will be kids but it hurts so much! i will let him be a kid! by the way i live in Windsor.Ontario Ann

Ann, No worries about butting in on a post, it was actually meant for you, I just got the names mixed up! Anyway, it is worth investigating, about the strep at birth, etc. Reactions come on stronger with each additional infection, so, that MAY be why you didn't notice anything before. With my son's first strep infection, he was almost 3, his reaction was so minimal, mild ocd symptoms, we didn't even worry about it, and it went totally away. Next strep, almost 5, whole different story!! Dramatic ocd/vocal tics. Do your sons symptoms get worse lately after illness, infection, or immunizations? Does he have separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics? Kelly well he was just sickl about 1 month ago with Bronical asthma and yes the tic's did come more!! he gets fevers all the time that will last a day or 2 and go aways when i bring him to the doctors there is no reason for the fever but he does not do a strep test on him either!last year when i really noticed the Tic's was when he had a fever bad and could not find any infection just after that was when i noticed the Tic's as for (separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics?) he just started school this year and he was fine with me leaving him with the teacher at the door but now he needs me to go into the school with him also he says to me when i pick him up where were you i was waiting for you! it is so sad but he is fine in a few mins! Nighttime well he has and still does wake up all the time at the least 2 to as many as 6 times a night! he just needs to see me and i rub his back he will go back to sleep! anger, moodiness well if he has been ticing alot he will get upset really easy and lash out at me him yell swear what ever he can do to get it out! i feel so bad for him when he is like this b/c it is like he has got to a point where he cant take no more! (he dont sit and cry or anything like that it is more a frustration thing)KWIM? i must say the tic's did go away in the summer for a little bit well not totally but it didnt bother him as much! Ann

Thank you it is so much easier knowing tehre are other people out there going through something similar I will go buy the multi Vitiamin without dye today i never knew anyof this till i came on this forum thanks again Ann Hi Calicat I live in Windsor Ontario i already have my binder for writing stuff down i had papers all over my desk till the other night and decided to get a book for this! and i will look into the thread labeled "essential threads" thanks you so much i have to run nowi will be looking at the essential threasds later Thanks Ann

Caryn i will be talking to my doctor about sending him for allergy testing i do not have to pay for this (i live in Canada) so i will ask but oh my it took 3 of us for his flu shot it will take ten of us for this i will do what you siad first by taking all the stuff you said away and see where this goes thanks Ann

faith I tested Neg but was Positive my son was very sick he was on a ventulartor for about 4 days i could not hold him for ONE WEEK he had very strong meds i have said something to my Doctor about this and he said that strep B was a baby sickness so i dont know but i9 have been reading so much about Strep and was wondering if anyone knew if it was the same thing Ann

Tsmommy Thank you so much for the words of encouragement they were much needed! I was just up and looking at my son while he is sleeping and i see how see and at peace he is i am so glad he dont have tic's while he is sleeping...all i have to really do is think about when he was born i almost lost him.. Thank God i have him even if he has tic's i still have him and he is the most lovable kid you will come across that is why i get so upset when he is up set but i guess i have to think he is human like everyone else! i am so happy i have found this group and i will learn to cope with this..... i think my son is doing better then i am! well once again Thanks! Ann

Hi Nicks Mom, Just quick info. on PANDAS.. Stands for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep. This means your kids tics and or ocd come on suddenly and/or dramatically, and also dramatic increase in these behaviors occur after a strep infection. There can also de dramatic increases in this behavior after other illness or infections. Do you recall your son being ill before this recent increase? Just something to consider. god Bless. kelly i am sorry to butt in a post but i just have a question... my son had Strep B Pneumonia whenhe was Born he was in the NICU for a week would that be why he has these Tic's? i am just wondering b/c i read in the above post about PANDAS do any of you think it could be a link?? Ann

I will talk to my doctor about this but i hope it will not cost much money b/c i am a single mom raising 3 kids and fund are tight! today has been a bad day i am getting so down i am thinking now what i did wrong. his teacher said he really noticed him ticing today that makes me so sad i could just sit and cry i am so overwhelmed with all this! i just dont know what to do next! everyone i have talked to keeps telling me to leave it be he will outgrow it well he has only became worse with time. i dont want to put him on any meds , but i dont want him to go through this either! i am truely at a loss. i even yelled at him tonight something i do not do! b/c he spilled Milk at dinner! i need to take a long bath and relax and do what i do every night PRAY!!! ok once agian i am rambling on! Ann

Caryn, (I mean ANN!) Hi, my name is Kelly. I jst was reading your post and I noticed your son had a flu shot. Was this recently and do you think the tics started after the shot or increased after the shot? Tics, mood and behavioral issues, can be the result of an immune disorder, , like an over active immune system affecting areas of the brain responsible for behavior and movement, and this can be aggravated by immunizations, shots, infections, strep, etc. Go to www.webpediatrics.com, click on PANDAS/PITANDS and read the info. I don't know, maybe this can help. Wax and wane means to increase for a time (WAX) and then periods of decreased activity (wane). This is a pattern of some tic disorders, wax and wane. Kelly Hi Kelly, my son has had Flu shot before and i didnt notice anything before. Last fall he didnt get one b/c of shortage but this year since he has Asthma he was a priority to get the flu shot. he also has this skin disorder call Falulictis (sp?) it is a rash on his body something to do with the hair follicles it is extremely itchy .. so i donut know if all of this is connected or not but i just want to find some answers for him! Thanks for letting me know what wax and wane means i will check out the link you gave me after i pick my son up from school t thanks once again! Ann

Caryn ok so this may sound silly but do i just take him off the wheat and corn or do i ask the Doctor for testing? i dont know how that would go over it took 3 of us to hold my son down just for a flu shot lol i will try anything as of now! i look at him and see more tic's coming out it is like i am looking for them! i know crazy... Also his mood changes like a drop of a pin he will be fine and the next he is frustrated and angry. i am sorry for rambling on but i keep thinking of more i want to say! Ann Oh yes i wanted to know what does wax and wane mean?? sorry i am so new to all this!

I am so glad i joined this group, i come one here and read stuff like this see there is other things out there then the MEDs i am sure it is hard to find out with it is that triggers the tic's but i am will to put my every waking moment into this! i am so happy you son is doing well! Ann

Carolyn.N.. thank you so much i will look at the links as soon as i have a second to read them alone! I have read a lot on the net and there is one thing i am sure of i do not want to put him on the Meds for tic's I would like to find other ways to help him. i have been writing down what he eats and how well he has slept that night i have read somewhere if they do not sleep well at night this could trigger Tic's I will let you know one thing I live in Canada so I don't know if theses vitamins would be here or not i will look thought again i want to say thank you! Ann

Hi, I am new and I am nervous about posting took me a few days to come and really do this but, i just want wondering if someone could give me advice? I have a 4yr old son he is my 3rd child, and for the past year and half i have noticed him ticking! he does his eyes squinting them, clenching of his fists while he curls his toes in, stretching his mouth, and sniffing through his nose. i am at a loss i did bring him to my Doctor but he said all kids get Tick's i said well my other kids never did he said they may have just never noticed them! after about a month of me bringimg him to the Dr they let up not totally gone but i hardly noticed them at all. I have noticed them now for the past few months and they are getting worse when he started ( well when i noticed them) he was only squinting his eyes and clenching his fists and now there are many more! I feel so bad for him b/c he just started J/K, i do not want other kids to make fun of him i know i cant stop this but it makes me so sad for him. On top of this he has a speech problem not to many people can understand him. ( he is getting help with that) I guess i would just like to know how to handle all this i feel so bad for him and want to make it all better.. i am so sorry for rambling on like this but i don't know where to turn i am at a loss! thanks for reading Ann