Vicki

Thanks so much! I would like our whole family to be checked to see if we are strep carriers. Thanks for the advice!

Streptoccocinum and Lycopodium? The doc wants to start my son on 3 months of the Streptoccocinum and 1 month on the Lycopodium. Any advice would be much appreciated! Thanks!

He had another culture Friday and came back negative so I am guessing the amoxicillin kicked it out. But, he is still having vocal and motor tics and the fears have all come back. The doctor actually wrote down a plan. Fish oil, probiotic, vitamin D, and 2 homeopathic meds... one called streptoccocinum and the other is lycopodium. Have you ever heard of these before? She also is putting him on an anti-inflammatory diet.

He has had multiple positive herpes zoster tests. His strep came back negative after round of amoxicillin. He is starting on two homeopathic meds. .. streptoccocium and lycopodium. Fish oil, vitamin D, and a probiotic as well. Plus they are running more blood work. And putting him on an anti inflammatory diet. Vicky, I think your son would have gotten a varicella vaccine at one year if you were followimg the schedule at that time. If he had a herpes zoster outbreak (sound like it's mild) that would have made sense. There have been other reports of children getting shingles after getting the vaccine. The virus stays dormant in your body and can reactivate as shingles. The part I don't understand is having a case of chicken pox 2 years ago. From what I understand the virus always reactives as shingles. Has anyone ever confirmed that it's herpes zoster with a lab test?

Also, you might want to read here Pinned (at the very top of the 1st page of the forum) These are some commonly asked questions Helpful Threads & Links for PANDAS http://latitudes.org/forums/index.php?showtopic=6266 Q: My doctor has said that my daughter is a strep carrier and that the positive strep culture is meaningless. Is this true? I stopped all vaccines when my son was entering K. I heard too many stories and also my sister-in-law stated a good case of why she doesn't vaccinate. I also watched my friend's healthy daughter become autistic and they are saying its because of vaccines. He may have had the varicella vaccine before K. He has had the herpes zoster that started when he was a year old. He gets it right near his left eye. Comes out once a month til I cut gluten out two years ago and only comes out about every 9 months now. He had chicken pox 2 years ago. It was around Christmas time when he was 7. He was always extremely cranky and quickly frustrated every time the herpes zoster came out. That was a true sign it was coming out. Allergies trigger it, like a wood stove, cats, and pollen. And gluten. Thanks for the information on amoxicillin. I will check the link out now...

He has had over 2 dozen impetigo and herpe zolster infections in his nose and near his eye since he's been a toddler. The ped is just now looking back over all his history and things are adding up now to the pandas. Impetigo is either strep or staph and every time he gets it his tics and fears come out overnight. She is just now recognizing how things are making sense. Praise God!

I just started this year homeschooling him and my daughter. With the clinginess and anxiety he has he would have never set foot in a classroom all day without me. We can't even get him in Sunday School for church anymore.

Yes, the doctor is a homeopath. The amoxicillin seemed to work for a little, but now he is back with tics and fears. I gave him ib profen the other night and it worked a little. He goes back Friday after the amoxicillin is done to get another strep culture done. She was saying if the strep is still there he might be a strep carried. Does that change anything?

Had the appt today. His aso test was in normal range, but tested positive for his strep culture. She believes this is pandas and he may be a strep carrier. She is going to do another culture Sept. 12th when he is done the antibiotics. His tics have almost completely gone away. Still has a little bit of fear and clinginess. She is suggesting going the homeopathic way instead of a prophylactic antibiotic. Any suggestions?

His strep culture came back positive. We meet with the doctor tomorrow morning to set up an action plan. They are still waiting for more blood work to come back. They are leaning towards PANDAS with him.

Amoxicillon. I will keep you posted. Thanks!!

Amoxicillon. Yeah, this is going to be a long journey. I am blessed to have this site so I can speak to others for encouragement when I have tough days. Pandas is really interesting to me. I can't find a book on it. Do you know of a good one?

My son's strep culture came back positive. He starts antibiotics today. The doc ran other blood work and have an appt Thursday. Very new to this. ...

I am going to search very hard to find another doctor. My friend suggested getting allergy tests ran. Is that something that would be good to do? My son also has warts on his toes right now we are treating since June. Interesting! Thanks so much for replying back. It's very helpful information for me since this is all new to me. I thought it was all neuro until I started just recently talking to a friend and reading about Pandas. Thanks again!