Mother_M

Thank you so much for your answer. I guess I wonder if the pattern of recovery is the same even after IVIG or plasmapheresis. You say IVIG worked extremely well with your child, does that mean your child does not have flares anymore? Do you still give antibiotics?

I am a swedish mother of a 6 y old daughter who has had pandas for two years now. She was really ill with about all the symptoms but thanks to her doctor we got antibiotics immediately and she got well in a couple of days. Now to my dilemma: If we miss to give her antibiotics for just one day, she is ill again within two-three days. I feel that the pandas is just "on hold". There is no proven strep but she had an infection with high fever about a week before she got pandas. Now we are talking with her doctor about plasmapheresis but I am really unsure what to do. While on antibiotics she is symptom free except small relapses when she get a cold or another infection. But on the other hand she is ill when out of antibiotics, although she is not that ill as when the pandas onset. Please give me your thoughts and your recovery stories with either antibiotics or plasmapheresis.