I have a 10 year old son that was recently diagnosed with PANDAS. We were misdiagnosed almost a year and half ago with TS, ADHD, OCD and Anxiety by a neurologist. But for my healthy son to just start twitching one day and then slowly develop more Tics and then more symptoms within the last 6-8 months I knew that he was misdiagnosed. I found PANDAS myself doing research and his pediatrician is amazing and we found a new Neurologist and I like one of them in the practice more so than the other.....she only extended my sons antibiotics for a month long treatment and added Clonodine yesterday. After researching it, they use if to reduce Tics in TS patients. I am confused but started the medication last night to help his get sleep, which it did. He is still VERY hyperactive and Tics still, no where near as much before starting the antibiotics but it seems as if all healing has come to a halt as of yesterday...no more improvements?!
I saw your post for the Hemp/Cannabis Oil treatment.....I truly believe that would be a HUGE help for my son whom is extremely skinny as well. I live in Florida though and I do not think it is legal here. Does it have to be prescribed by the Neurologist or would it be something I order? I am a little nervous about it but I am at the point that I am willing to do whatever it takes to help my son get back to his normal healthy happy life!!!!!
Any help you can give me will be greatly appreciated!! Thank you so much for your time
