It is true that not many doctors (and therapists) know about PANDAS. My son started exibiting OCD symptoms almost over night. We started looking into therapists who treat OCD when one of them suggested that we take him to our pediatrician to rule out anything neurological. To make a long story short, our pediatrician mentioned a new medical theory that associated the sudden onset of OCD symtoms with a recent strep infection. He suggested swabbing his throat to check for strep. The next day we got a call from the doctor saying he was positive for strep. We were completely shocked because he had no symptoms of strep. He immediately started taking antibiotics and the OCD symptoms almost immediately started lessening.
I am so thankful for our pediatrician, but our son is the first patient he has ever treated with PANDAS. I feel like we need to get help from a doctor who specializes in PANDAS. Does anyone know of any doctors in the Southern California area that treats PANDAS patients? I have been in contact with doctors on the east coast, but have not been able to find any doctors on the west coast who are knowledgeable about PANDAS.