thirteen

Thank you all so much for your support and wonderful advice. I am so relieved to find others to talk to about all of this. Being alone in this, is so hard. I have seen the conference that was held in RI last week and I will put it onto a flash drive. Great advice, thank you nicklemama. EAMom, I will post under PANS/PANDAS (Lyme) I only posted here because I wanted to introduce myself as a new member. Wasn't sure exactly how to get started. Qannie47, thank you and I will never give up on my little girl. We are all they have, it's our job JoyBop, Amoxicillin never even worked for my daughters ear infections so I didn't even want to try it. I am in search of a new Dr. who who listen and have asked for a referral to a Rheumatologist. I spoke to his nurse and was told that he treats for PANDAS and has a couple children coming there for it. I really hope I can get somewhere with this one. Mama2alex, I sure hope so, I will not stop trying that's for sure. You are right about wasting time and money, I have nearly lost my job due to Dr.'s, pyschologists appointments, etc..I need answers and I will search until I have all that I need. Then I will help you all and all the others out there spread the word across the world. Missmom, I am so glad your son is doing well and I will look into vaccinations. My daughter is 13, so as far as I know the only one they will be wanting to give her is the Guardasil or however it's spelled, I will probably choose to steer clear of that. Thank you all so much. I am not feeling alone anymore!

Hi I live in WV and my daughter started having tics, anxiety and OCD about a year ago and I need help. This has been the hardest thing I have ever been through. The OCD came on overnight in full force. She has been going to a Psychologist for almost a year. I started researching this and when I ran across P.A.N.D.A.S, I said "That's it, that’s my daughter." I have felt so alone in this battle and can only imagine how much more it affects her. My heart breaks for her. I took her to her Dr. with printed out papers in hand and requested blood work for pandas. Her Dr. said that not many Dr.'s are willing to acknowledge it but he however, thinks it could be possible. The blood work came back and her strep antibodies were indeed high. He started her on Amoxicillin for 10 days and when I took her back and told him that I had noticed a slight improvement his story changed. He then said that he did not feel comfortable giving long term antibiotics and that I would have a hard time finding a Dr. who would. He said I could take her to Ohio but I am unable to do that as I am a single mother of 2 with no help. I greatly welcome help in knowing which step to take next. My daughter has this I know and I think it's a shame that these Dr.'s only want to mask this disease instead of treating it. I need help, I need believers.