We're on the same boat- our 8yr old daughter onset Aug 2013- 1500+ ASO titers, initial response to Augmentin, 600 MG 2x/day, then occasional flares...then seemingly less receptive to Augmentin. Finally agreed to the tonsillectomy and March 2014 we did it. Results showed a peritonsillar abcess, plus tonsils with Enterobacter cloacae, Serratia marcescens and strep bacteria... despite tonsils looking 'just fine and small'. Validated the procedure. That said, we had about 2 weeks symptom free afterward, but now symptoms seem to be similar to onset. Frustrating to say the least and hard to know where to go next... Is it a result of the bacteria being released... Will it tamper down in a week or two and improve, are we next in line for IVIG- what about homeopathy? Has anyone had solid, long-lasting success with homeopathy?
Where is the string of posts about what worked for other parents who are on the other side? I'd love to see these accounts clearly laid out with brief history of case, path to health and quick reference for those of us who spend every waking 'free' moment researching everything... Sure would be nice to have a book about what worked for others. Aside from the original cases on PANDAS network, which was helpful.
