My name is Frank, I live in the San Francisco Bay Area. My daughter is 15 years old. I suspect she has Pandas. She is high functioning Autistic. Was doing well till she turned 14. Had a couple of seizures shortly after her birthday. Then her behavior changed drastically. She became very defiant, destructive and violent. Had to take her out of school because she refused to follow instructions, was harming other students and teachers,and destroying property. Lots of OCD. A couple run-ins with police due to running into traffic and refusing to comply with requests to come to safety. Became obsessed with reorganizing the house and destroying and throwing things away. Had to move all our things into the garage and lock it. Also locked all kitchen cabinets and our bedroom door. Living room and dining area became a "no mans land". My wife and I eat upstairs with my sister-i-law's family. We bring our daughter her meals downstairs. Put her on zoloft, respital, had her see a DAN doctor. did extensive tests, blood, heavy metals, stool urine. Found she had heavy metals, also parasites and fungus infections. Test for Pandas was negative. Had her on a GFCF diet, Celation therapy. I'm not going to get into alot of specifics here as don't have all the data to hand at the moment. She was taking a lot of vitamins and also oxytocin to balance her hormones. Things did improve slightly for a while but she has regressed recently. Lots of OCD again. She is even aware that this had gone away and has come back again and wonders why. She refers to her OCD behavior as "back and forth". She can be calm for hours in the afternoon, listening to music, playing piano or studying Japanese (something she decided to do on her own). But then in the evening, things change. Its starts with repetitive questioning for which there are no answers, yet she demands answers and gets very anxious if we don't come up with the right one. This will continue until she finally goes to sleep. Another thing she does is blow her nose constantly for hours or days. Nothing relieves it and then it just goes away. We thought for years it was an allergy but now I'm thinking it might be a tic. We are at a loss as to what to do next. Nothing seems to really a change things for very long before she reverts back. Pandas just seems to indicate to me as something we should look into. Your site has a wealth of data regarding this subject which I've just discovered. Was hoping someone might have some suggestions of what we could do to as a next course of action. Thank you for your time.
