PearlDoves

Wow, how did you find out that you had methylation and heavy metal issues? What does that pertain to or what is that about?

Hi Faith Well the thing is my father has tics and my grandmother does as well, so I know that there is some evidence for the genetic factor going on for me. I did take medications for ADD, however I find this aspect highly unlikely since I believe by the time my tics started to manifest I was basically not taking or rarely taking those meds. I started taking meds probably in junior high, and in both cases the meds were not very high doses. Probably by my second semester or second year in college I was not taking those meds anymore, and it was while in college that my tics started to get really bad, especially around 2 or 3 years of being off those meds completely. It is possible that I use to do a complex motor tic as a child, but as I mentioned earlier, it might be hard to determine what that actually was. I did read up a bit on dyskinesia, there are so many variations, some of which can have similar properties with TS, but its hard to determine. I think my fathers tics did start before 18 which is more normal for TS, maybe I'm just a weirdo in this case, I dunno. Its just all very frustrating though. I wish I could have definite answers. I've been tempted to contact the TSA about my situation. Thanks for the suggestions, I appreciate it!

Hello Everyone, I have check out some other Tourette’s forums and was kindly given a link to this one as well. I'm not your usual I suppose. At around 19 I started ticing on a rare basis and progressed movement tics that would keep me at home from social events. At some point vocal tics started manifesting as well, but I can't remember exactly when. I had gone to a neuro, but because tics didn't manifest in front of him, he was trying to rule out epilepsy I think. A few years later, I went to another neuro and he put me on neurontin and didn't disclose to me anything of what might be causing this from what I can remember, now around 10 years later from my orginal onset, I became really frustrated with my ticing, to the point that I referred myself to a new neuro doc, and based on my history both medically and genetically, we've pretty much both have come to the same conclusion that I have Tourette's. there are some things that could have led of to this from childhood, such as supposedly having ADD as a child that might seal the whole "comorbity" issue. I've had a clear MRI and in the past when I saw my first neuro, I believe I had a clear EKG, so while I'm more rare being with older onset, I know that it does happen. My father has a tic and my grandma does as well, though not nearly as bad as mine are, they can easily get thru life with theirs it seems, while mine can make things difficult and distracting at times. Right now my neuro is having me do monthly B12 shots, and I've heard that this might be good or bad. I'm going to be seeing an allergist this coming week to try and rule out other agitators and am interesting in magnesium supplements as well. For now my Neuro also allowed me to try an antihypertensive med - very very low dose to see if that helps/ He said "no need to rush" as far as medications go and then also encouraged me to seek the alternatives. I told him about the Ferritin and Magnesium topics. As far as the magnesium goes, how do you all supplement with this? Just a mag vitamin supplement or do you all try something else?