Lisa Kraft

Thank you for responding. I changed the settings a few different times. But the latest setting I have is exactly what you told me and I am still getting e-mails. My latest e-mail said, Forum Subscription New Topic Notification... So I must still be doing something wrong. Thanks, Lisa

Hello all - I'm sorry this is not specifically about TS. But I come here often to read and gather info. My child developed severe, sudden, complex tics around Jan. 5 and we are currently taking steps to find out why. My question is: How do I prevent notifications from coming to my e-mail addres? I just want to check the forum periodically at my convenience. I seem to have tried every setting in my "E-mail settings" but cannot seem to get it to work. Thanks, Lisa

Oh, thank you everyone for the info! I'm almost in tears as I feel the support and encouragement! My little boy will be okay - I am trusting the Lord for this. I admire each of you for your strength and tenacity in caring for your little ones! Your life experiences encourage me to 'fight the good fight' and not give up. Blessings, Lisa

Thank you so much for replying. Honestly, I'm not surprised about the journey you've had. I'm a tiny bit desheartened because I spent the whole year of 2006 trying to get my own medications stabilized. I have Hashimoto's disease (hypothyroidism) and all my thryoid tests were 'normal'. It took a lot of begging until they finally tested for antibodies (they were sky high) and then once it was confirmed I also pleaded to experiment with different combos of drugs, etc. Needless to say, I am better than when I first started on my journey but still nowhere near being symptom free. All that to say, my family doctor already thinks I'm obsessive and now my son's circumstances sound similar. We have NO HISTORY of Tourette's in our family. However, we have history of autoimmune diseases. I went to the walk-in clinic yesterday and had Sam tested for strep. The 1-hour culture came back negative and i won't be suprised if the 24-hour culture is negative also. They would not take any antibody tests - go figure! He had absolutely no symptoms except - swollen lymph glands. The ped did admit that points to some sort of infection even though he doesn't seem sick. It's interesting, because that is one of the symptoms with my thyroid problems - swollen lymph glands. Now I'm the one doing the rambling. I'm trying to pull up my boot straps and get ready for another round of trying to sweet talk doctors and research info, etc. Thank you for sharing with me. I guess I have a little better idea as to what to do next. All this to say, my mommy gut feeling says that this is an autoimmune thing for Sam. It all adds up. Thanks for listening! P.S. I guess I'm also fretting a bit about being the 'inspiration' for my little guy when I myself am still feeling tired and frumpy all the time because of fatigue. Maybe I idealize too much what a mommy can/should be for her kids. I do love him, that's for sure!

Oh, one more question please. Did you just do one run of antibiotics (e.g. 10 days) and then the tics stayed gone? Or does yoru child have to be on antibiotics every day for a long period of time? Thanks, Lisa

Thank you so much for this! It encourages my heart very much. I am a bit concerned that everyone else in the family got sick on December 26 and Sam (my son) seemed a bit pale and tired a few days after that. so maybe we've already waited too long. But this is awesome info for me. I would love to hear from anyone else who had the same experience. Thanks, Lisa

Hello – Thanks for allowing me to post on this forum. My 4-year old just started complex motor tics on/around January 5, 2007. From then until now, he has increasingly gotten wore. His tics include head turning, blowing, saying one word over and over again, and arm thrusts. It happens almost every minute. There are a few rare moments of the day when he is at rest and he doesn’t have tics for about 10-15 minutes at a time. We have an appt. Feb. 8 with a pediatric neurologist. Please help me know what questions to ask. The part I am having the most difficult time with is it has seemed to happen ‘overnight’. We traveled out of town for Christmas and it started about a week after we returned home. 2 interesting factors: 1. Everyone at Christmas got sore throats and runny noses but he didn’t show signs of any illness. 2. He had 2 teeth filled on January 2nd. Are these worth mentioning to the neurologist? Has anyone else had children where the TS came on suddenly? Thanks, Lisa