coloradomom

This is my first post...I live in Colorado, too, and really think my 7 year old may have PANDAS. He had strep in November, and the first day after he finished his antibiotics he developed a headache. I took him back in a couple of days later for another throat culture, but it did not show strep. Fast forward to now and he still has a daily headache, which by the way does not respond to advil or tylenol. His behavior has changed in that he is more moody and irritable than normal. He has now been to an eye doctor and had an MRI. Everything checked out okay. I have been researching headaches following strep. It is during these searches I learned about PANDAS, although I never did see any connection to the headache symptom. But, having heard of PANDAS now, what started a few days ago really scared me: he started blinking rapidly and frequently. I took him to a different pediatrician today and after explaining the ongoing mystery headache which began immediately following strep coupled now with his blinking, the doc actually (to my surprise) mentioned PANDAS. But, he researched it for just a few minutes and came to the conclusion there is no link between headaches and PANDAS, therefore the blinking must be an unrelated tic.. So now my son has been diagnosed with a tic...just a tic, supposedly unrelated to the mystery headache that began immediately after strep (now almost 3 months ago). We have an upcoming appt with a neurologist, but I would so greatly appreciate a referral to a Colorado doc (we live in Denver) who is "PANDAS friendly". Thank you!!!