lsad765

Thank you airial, dcmom, and LLM! I can't thank you enough for taking the time to respond. This discussion board is an incredible resource, and I am grateful to have found it. The suggestions to document behavior changes in some kind of journal form is an excellent one and I have begun. I have also located a ERP therapist -- named Karen Landsman -- in Chatham, NJ. Does anyone have experience with her? She says that she has great outcomes with children with OCD. I understand the point that ERP may not work during a flare up, though I believe our daughter is not currently in a major flare up -- I just finally put it all together and saw the connections between behavior, OCD, and strep and have gotten her diagnosed. With my daughter this has been going on a good 3 years. Many thanks again and I would be very interested to hear about any other members' experiences with Cefdnir for PANDAS and also about ERP with young children (my daughter is 6). I'll search old posts too. Thanks again --

Thank you SurfMom and hugs2day for your welcomes and responses. It has been great to find this forum! Thanks for the tips on keeping a journal of symptoms and the differences between antibiotics. I have learned so much just in the last week. I think in the spectrum, my daughter's symptoms are milder than many but still affecting her school work, socializing, and self-esteem and for those reasons, I'm glad to be learning from others here to help getting her feeling better as soon as possible. Thanks again --

Hi Nicklemama, Thank you for your response! I'm glad to hear that I shouldn't expect any miracles this soon (of course, I was secretly hoping that I would....). We will wait to see how it goes in the next month, and of course I'll be getting the results of the bloodwork in a week and talking to Trifiletti about them. I hope this will shed more light on my daughter's situation. Thanks again --

Hi, yes, we do live in NJ! I'd love to know more about the support group for parents. I'm not sure exactly how this forum works yet, but if you are able to private message me with any info about the support group, I would really appreciate it. Thanks!

Hi everyone -- My 6 year old daughter was diagnosed with PANDAS last week (Wed Jan 16) by Dr. Rosario Trifiletti in Ramsey, NJ. He ordered bloodwork and put her immediately on Cefdnir. She started the Cefdnir 5 days ago. I was under the impression that her symptoms would immediately improve with antibiotics, but we have seen no change so far. My daughter's worst OCD symptoms are: - excessive wiping after using the toilet - brushing teeth obsessively - agonizing frustrations in getting dressed Some background: We think our daughter's PANDAS started 3 years ago after two bad strep infections, and then her symptoms got much worse about 6 months later after another bout of strep. Since then, she has had symptoms but they have waxed and waned. In the past 2-4 months (after strep again), they have gotten worse again. I only just made the connection a week ago that she might have PANDAS. Trifiletti seemed very sure based on her history that she has PANDAS. This would mean that she has had PANDAS for 3 years. My daughter's bloodwork will be back next week. In the meantime, do you think we should see any improvement of her symptoms? I was certainly hoping so! Do you think it will be harder to resolve since it's been 3 years since the PANDAS started? Does anyone have experience with Cefdnir for PANDAS? My daughter is allergic to penicillin and I believe Trifiletti put her on Cefdnir because once in the past, she had to go on Cefdnir after Azythromicin did not cure a case of strep. I have read that many patients have good results with Azythromicin, and I don't see much about Cefdnir. Also, do those of you with experience with this suggest that we start some kind of cognitive behavioral therapy in the meantime? We want to do whatever we can to help our daughter now that we are starting to grasp what she is going through. I look forward to any and all input. This is all new to us and rather overwhelming. Thanks --