mrindianajonesprm

I do, thank you.

IHerbert This might be an interesting article to read if you have not. It has a couple errors in it, however it was still interesting on perspective. http://groups.yahoo.com/group/Tourette-Upd...ates/message/11

This is the most common question asked about Tourette Syndrome. Here are a couple of links that can add some insite to the subject. Will My Children Have Tourette Syndrome by mrindianajones.com http://www.geocities.com/mrindianajonesprm...child_hv_ts.htm The Genetics of Tourette Syndrome by Caz http://au.geocities.com/jones_kacm/gene.htm WHAT IS THE CHANCE OF MY CHILD HAVING TOURETTE SYNDROME? by Caz http://au.geocities.com/jones_kacm/chance.htm Hope this can help a little.

Soon all our resources will be moving to http://www.tourettes-disorder.com You will be able to get to them using any of these URL's http://www.tourettes-disorder.com http://www.tourettesdisorder.com http://www.tourettes-disorder.net http://www.tourettes-disorder.info http://www.tourettes-disorder.org http://www.tourettes-disorder.us http://www.tourettesdisorder.org http://www.tourettesdisorder.net http://www.tourettesdisorder.info http://www.tourette-syndrome.org

Luck and Prayers,

Gene linked to Tourette's syndrome,,, Plus more Titles http://groups.yahoo.com/group/Tourette-Upd...ates/message/20

Dear Members and Friends: This alert is going to be the first of several different alerts that will be sent to you in the next couple of months. All of the alerts will be requesting you to take action, but in different ways, so please respond. By taking action on one of the alerts does not preclude you from taking action on all. SUMMARY: On June 12, 2003, after months of negotiations, the Senate Health, Education, Labor and Pensions Committee introduced a bipartisan special education bill, S. 1248, Individuals with Disabilities Education Improvement Act of 2003. The Tourette Syndrome Association applauds the Senate for developing bipartisan legislation that attempts to find compromises in many complex educational issues. S.1248 is a drastic improvement over the House passed bill, H.R. 1350. Many of the concerns that TSA had with H.R. 1350 were addressed in S. 1248. For example, including convening a manifestation determination hearing after a student has been removed (H.R. 1350 removed this provision), the bill takes proactive steps to assist individual students to receive the supports they need to manage their behavior (H.R. 1350 eliminated positive behavioral supports), the bill successfully addresses the need for states to do more around alternative assessments (H.R. 1350 did not), and S. 1248 continues the annual IEP process (H.R. 1350 proposed an optional three-year IEP). Although S. 1248 is a marked improvement over the bill passed by the House and it addresses many of TSA's concerns—there are still some provisions that need to be fixed, namely, eliminating functional behavioral assessments, short-term objectives and full mandatory funding. ACTION: As promised, the Senate Health, Education, Labor and Pensions Committee is conducting bipartisan feedback meetings on the Hill to give groups and individuals the opportunity to comment on the bill before they mark it up. The Committee has also setup a temporary email address to receive responses to the bill the individuals that can not make the meetings. TSA encourages all members to send the below email to this address: idea_feedback@labor.senate.gov. Emailed responses should be sent to the attention of and titled "Annie and Connie – IDEA Reauthorization Feedback." Please note that this email is only temporary and will not long work past June 25th. EMAIL MESSAGE: Subject Line: Annie and Connie – IDEA Reauthorization Feedback I am writing you today, a [parent, grandparent, relative, teacher, friend or advocate] of a child with Tourette Syndrome, to applaud the Senate Health, Education, Labor and Pensions Committee for developing a bipartisan bill on many complex special education issues. This bill, S. 1248, is a drastic improvement over the bill that passed the House of Representatives. While you addressed many of my concerns with H.R. 1350: retaining manifestation determination hearing, positive behavioral supports, alternative assessments, and the annual IEP process, there are still a few provisions that concern me. First, the bill eliminates the requirement to conduct a functional behavioral assessment. How will a behavioral intervention plan be implemented without an assessment? Second, S. 1248 alters the process by which students with disabilities, including Tourette Syndrome, can be disciplined for various violations of the school code of conduct. While this is a stark improvement over the House bill, the Senate bill permits schools to remove certain students from their current placement for specified violations even if the violation was a result of the child's disability. Third, S. 1248 removes short-term objectives from a child's IEP and replaces them with a statement of the child's progress toward annual goals that includes quarterly reports. This new provision will make it more difficult for parents and schools to measure a student's progress. Finally, S. 1248 makes no mention of mandatory full funding. As a [parent, grandparent, relative, teacher, friend or advocate], I support mandatory full funding, as opposed to discretionary full funding that was passed by the House. Thank you for all of the time and hard work that you put into crafting this bill. As I already mentioned, this bill is drastic improvement over what the House passes, but a lot more can be done. Sincerely, [Name] [Address] ______________________________________________ Jeremy R. Scott Government Relations Specialist Tourette Syndrome Association 1301 K Street, N.W., Suite 600 East Washington, D.C. 20005 Direct - 202.408.6443 Fax - 202.408.3260 tsdc@tsa-usa.org ***************************************************************** Please Post this to all your groups and message boards. Thank you. Paul Marshall Ph.D admin@tourettes-disorder.com http://www.tourettes-disorder.com ***************************************************************

Hello, He can always copy it to your's or his computer and use it as he likes. I have several tourette guys that I have made up so I am not completely sure which one you are talking about...regardless hope he has a good trip. God bless

I am familiar with the diet. Anything one does to the immune system is going to help in a # of ways, especially by relieving stress on the system which therefore may reduce tics or some of the co morbid issues. However unless the symptoms of the disorder in review were began by the introduction of one of the allergens I have never seen them completely go away due to the removal of an allergen, just help in dealing with and reduction of some symptoms. I would compare it to a computer, and it's mother board, you can add and remove programs, even change the operating system, however if the mother board (genetics) of the computer is disrupted in the first place it may not matter what the program or filter, it is going to be there noticeable in some way shape or another. However the less trash in the system the better it runs.

Thank you, be sure to sign the guestbook and let me know when you were there. It is always nice to see who is around and from where. I have a group for updates I find, if you are interested send me a message here mrindianajonesprm@msn.com and I will get you some info.

Hello, I am new to the forum. I have not been on line for a while so did not notice it here. Here is my site on Tourette Syndrome mrindianajones.com Personal Flash Intro tourettes-disorder.com Tourette-Syndrome.org I am always looking for new information and subjects to share with my lists. Thank you,