jezzabella

Thank you ladies for all the wonderful information. We live in Huntsville Alabama. The only DAN doc we have here was Dr. Mary Sullivan and she moved to Florida. My son used to see her she did a test for yeast once and found he had 10 times the amount he should have. She tx him with diflucan for 2 months and that's when he started speaking in full sentences. My son only has Alabama Medicaid for insurance so we will have to pay out of pocket for every doc visit, travel expenses, lab work, etc. All the peditrician did was give him a aso blood test and it was negative so she will not even entertain the idea of more testing. I've emailed Dr. K, it says he will respond in 24 hours but that was a few days ago and I haven't heard anything back yet. I know I can get a IGg test from great plains lab but I don't know if you have to have a doc order for it. I will check on this. His peditrician did refer him to a pediatric neurologist here but said it could be 6 months before he can get in. We are waiting to hear back about the appointment. I am going to read the links you guys posted. Thank you so much!

Hi, I just came across PANDAS last night while trying to figure out what is going on with my son. He meets every single one of the symptoms. Also both myself and my husband have auto immune diseases (I have MS and my husband has psoriasis). I also am a carrier for strep and have never tested positive or shown the signs of it. This has been going on over 2 years now. He has been put on every anti psychotic and nothing helped. He also has been given just about every stimulant adhd med which made him worse and then made the ocd worse. He was given Strattera which is a non stimulant and it had no effect. I was not paying attention to all the details of when it happened or what was going on when it happened because he is autistic so I just thought it was because of that. I had never heard of PANDAS until last night. However, my husband specifically remembers going to pick him up from school one day and his teacher said it was like someone flipped a light switch with my son and he changed literally over night. Long story short, I am at my wits end. I have taken him to 6 different psychiatrists and no one can help him. Everything they try medication wise either does not work or only works for 2 weeks then stops. When I came across PANDAS last night it made so much sense then. I honestly believe my son has this however I cannot get any of his doctors to even entertain the idea of it. I do not understand why they are so hesitant to write scripts for anti-biotics but will hand out anti-psychotics like candy. I really need any help you all can give me. I do not know how many mg of the anti-biotic my child needs, he is 7 years old and 58 pounds. Also, which pro-biotics to give him. I am going to have to take things into my own hands at this point and I need any help or advice any of you can give me, thank you so much for reading this! If I cannot help him, the next step is they want him to go into an inpatient facility and I cannot handle that and he cannot either.