momto3ts

Hi to Everyone, I just wanted to say THANK YOU for all of your responses. I, too have been reading the forums for days and just finally registered to send my last post. I have never done anything like this before...I am so happy I did. We all have so many different situations and can come to the "table" with ideas, tips, information and encouragement. I'm so thankful to have found Latitudes and this forum. It's hard to call up your girl friend or your mom and vent or discuss the latest thing you read or the lastest tic thats happening. Nobody understands unless you are faced with it. Although now I have found a comfortable place to go and to ask questions or bump ideas off you. Can i say thank you enough???? Thank you to Kelly, Chemar and Samsmom....Your post was amazing, it brought tears to my eyes as I was reading it. I'm just so saddened that my son is going through this. Along with his tics which are both motor and vocal (and loud), his ADHD has increased so rapidly, it just makes me so sad. And very nervous for school, we'll see what happens next week. I also have two other daughters and certainly don't want them to be ignored or looked over because my son is going through this, but it's so hard when all you want to do is read, read, read, to find an answer. I guess I am actually looking forward to school so I can atleast reasearch during the day. Thanks for listening, I will be back often and plan on continuing the search, I hope you don't mind if I throw out the occasional question time and again. Momto3ts

What a relief to find you all!! A brief summary (I'm sure it won't be, I like to ramble). But if you don't mind taking the time to read I would love some help. My 8 year old son was diagnosed in June with Tourette Syndrome (complex), OCD and ADHD. I had already had a sinking feeling by getting on the computer and reading. Although I felt that I needed a professional to tell me. Upon leaving that appt. with the Peds. Neurologist I had a prescription in hand for Zoloft. My husband and I were takin' aback that there was no discussion, no alternative? The frustration grew over the next couple of days tring to figure out what to do. We had that prescription filled but happily never gave it to him. Unfortunately for us, we realized that he had been having tics for quite a while (we can look back now about 12-18 mo.s) but chalked them to being odd kid behavior, or "he's just a boy", and to think we were just completely annoyed (I'm embarrased to say). In April, before a Spring Break vacation my son was diagnosed with Strep, no big deal, as I thought. While I don't think he has PANDAS, his symptoms of OCD and ADHD came on quite suddenly. And noone in the family has Tourette's His grades dropped considerably the last quarter in school and began vocal tics once school got out (increasingly louder). That's when we finally opened our eyes and so he was diagnosed. We are now on a organic diet, trying to get blood work done. We are so nervous that school starts next week. Ya know you thinnk you have all summer to find help and I still haven't. My Neurologist said straight up "Unless you want to medicate him, I can't help you". WHAT????? My Ped's. Dr. is hesitate on getting blood work done and checking on levels of misc. items. WHY???? I have ordered so many pamphlets from TSA and i also bought Sheila Rogers book (haven't completely finished it yet). My biggest frustration is in what order do I do things? I have read you say DAN Dr.'s, or Intregrative or Environmental...Where do I find these Dr's?? Is Organic the right thing to do or should I try something else first? We have had allergy testing done. I realized that we are also facing major ADHD. My other issue, I can't for the life of me figure out his triggers. I am so impressed reading everything today ( I have been reading all of your entries for about 3 hours) and how you all know triggers. I have been keeping a journal since the middle of July. GREAT!!! What does that do? There is nothing that is the same. Why one day is great and you hear nothing and the next he is uncontrollable. It just makes me so sad for my son, I also have two other children and they see him dealing with this also, it just hurts. I'm not really sure why i wrote I guess I needed a sounding board and maybe some help. If anyone has an answer or a magic pill, ha ha ha, or a clue of how I am supposed to do this, I would appreciate hearing from you. mother in need