Hermann

hi kim and laurensmom, thanks for this interesting postings! maybe this data could increase the awareness for people with tourette's. ciao hermann ps: the link to the information of wikipedia about tourette's is just amazing!

german experts discuss a prevalence of tourette's in my country between 0,05 and 0,10 % of the population (0,10% = 80.000). some of the scientists think the prevalence is higher and expect it between 0,10 and 0,50 %. but the verification of all assessments is not possible at the moment, because there are no actual studies about. how many people are estimated to be affected in usa? best regards hermann

I made the same experience and I also heard this very often by other Tourette's from Germany: two or three weeks before springtime, motor an vocal tics increase to a notedly higher level. Hermann Tourette's -> never give up !!!

Hi Chemar, thanks for sharing your experiences! Regarding to ASPARTAM -> it is Phenylalanin, a precursor of Dopamine! I heard several Tourette's already who spoke about a bad influence on their tics. Do you know physiotherapy by Vojta in the US? It helped me really to calm down my motor tics and to get a special feeling for a better motoric self-organization. Hermann

Hi Chemar, I am also avoiding artificial food and flavourings as good as I can. A very special problem I have with monosodium glutamate in chinese and other food. It worsens my motor tics and leads to more spasms in the range of shoulder, neck and upper arms. Do you or your son have any experiences with monosodium glutamate? Hermann

Hi Chemar, thanks for your reply! I was already thinking about to buy the book of Sheila Rogers. I am sure, I am gonna make it very soon. It would be important for me to find out, if any persons with Tourette's have similar experiences. Maybe I meet someone here ... I guess it is very important that Tourette's have international contacts to share experiences and informations. Many are still living very isolated. If someone is able to speak German, I am providing an Tourette-Forum in German language, the URL is -> www.tourette-forum.de (with one category for english speaking people) and if the admin(s) of this forum agree with it, I would like to set an Link to this forum! Please tell me !!! Hermann

Hello !!! My name is Hermann, I'm new to the forum and would love to meet other people with similar disorders. I am from Germany and my english is not so good, especally to explain complicated neurological and nutritional experiences, but I try my best and I hope you'll understand me! Thank you! I am 49, my TS started when I was 12 years old with eye blinking and shaking my head. It was terrible and I had problems to concentrate at school. Four years later painful spasms in the upper arms appeared and some vocal tics. In the following years I had many ups and downs, sometimes more motor and sometimes more vocal tics. I tried many medications like Tiapridex, Risperdal, Orap, Haldol, Zyprexa, Zeldox, Solian etc. ... nothing helped me and after many years I stopped any medication and started to live my life without that. Homeopathy, Hypnosis and some other natural methods helped only a little bit and for a couple of weeks. But they didn't change the conditions of my TS. 1985 I came in contact with an old female doctor and after many many tests she gave me the advice to try a vegan and yeast-free diet. It was very hard for me, because I loved to eat diary products, fish and sometimes meat. After a long process, I noticed, that the advice of this old woman was the best I ever experienced regarding to my TS and the search for help. This special diet reduced the painful convulsions in the upper arms nearly complete and the motor tics for more than 50%. The abandonment of yeast (Baker's yeast in bread etc.) stopped the inner restlessness in my muscles. These are my personal experiences and I don't know which meaning it has for other Tourette's! In my country, the neuro-scientists are not interested to research in this field -> Tourette's and our daily food! So I don't know, what is behind that all !!? Are there any connections between the metabolism of Dopamine and animal proteine for example? ... Anyone here in this forum with similar experiences? I would be glad to come in contact. Hermann PS: After the definition of some Vegan Societies I am a "dietary Vegan" because I joined to this way of eating not because of ethical oder spiritual reasons

hi karin, i am hermann and i live with tourette's, ocd and hyperactivity and i am from germany. i would like to know: how was the trip of yr sons to luxembourg, france and germany? did they have good times in these countries in spite of tourette's? and what about the reactions of the people? cheers hermann

that sounds very good !!! all the best for you and yr sons and familiy! hermann