momtobpkid

Brandon had a t&A when he was 2. So they even covered the IV stuff? I get worried, especially since Brandon does not have tics or OCD (OCD when manic), he is not textbook anything, aside from meeting adult criteria BP1 when he was 7 with additional sxs.

I do not know if it is the garlic or the Diflucan or being GFCFSF for a week now or what, but Brandon has been the perfect child, nearly, all day today and last night. He even hugged me. My 15 year old hugged me, is smiling, is laughing, and all appropriately. And he is doing the dishes the first time asked! Now I am worried about does he have to have a die off reaction for the yeast????

We are starting diflucan and garlic and she wants to retest for both in a month or so. She said something about alternating treatment for the strep, but I am not entirely sure what she means by that. The difference with EMPower has been great and he is nearly off all psych meds. Things are still not perfect, but we are working on it. Lots of learned behaviors and it drives me nuts. Passive defiance, does everything but what he is supposed to do.

Doc emailed me, waiting for reply. Looks like she will call in Nystatin or Difflucan for the yeast but also add in garlic or olive leaf extract. Waiting impatiently for her reply so I can go and get the stuff.

I am thinking of starting him on garlic. It can help both the antibodies and the yeast. Have not heard back from doc, but she calls at odd hours and is traveling today, so I may not hear from her until tonight.

Brandon's copper is normal and is zinc is a little high. May be bc of his EMPowerPlus and may even out in time, I hope. We do not have an integrative MD, just the psychiatrist that is board cert in psychiatry. I do not think we could afford another out of pocket doc at this point. I am waiting to see if the doc will rx a med for the yeast or what she wants for tx since the only natural that it is susceptible to is the one thing he cannot have, which is grapefruit seed extract bc he is allergic. Hoping she will call in an rx and we will be able to get the yeast out like now. If Brandon goes on antibiotics, he will need to increase his EMPowerPlus by 50% and that stuff is expensive, plus I think it would be risky to do with his yeast and the yeast interferes with the absorption of his vitamins. I see yeast as the first thing we need to treat and like now. Anything that interferes with the vitamins can put him at severe risk of hospitalization, which we cannot do bc of the vitamins. The hosp will pull him off and put him back on psych meds. I feel like I am between a rock and a hard place. Oh and Brandon is textbook BP, met adult criteria when he was 7. He has additional sxs tho

Ok I will try to keep this brief, as my son is very complicated and has been treatment resistant Bipolar Disorder since the age of 6, sxs since the age of 2. He has been on EVERY med aside from Clozaril for tx of Bipolar Disorder, depression, OCD, ADHD. He also carries a dx of PDD. After realizing that conventional medicine was going to result in my son living in an institution, well I decided to see an integrative psychiatrist. He is now nearly off all meds and on EMPowerPlus, AminoPowerPLus, and probiotics. The new doc ordered a ton of tests. IgG severely high for gluten, casein, peanuts. So we started the diet on Sunday. Not all of his tests were back at the time. So tonight I get a couple others back from the doc in my email box. One was the stool analysis, which had VERY high yeast, meaning his yeast treatment did not work, so we need to address this ASAP. The other thing is his strep antibodies were very high. He has not had an infection for probably a year, never had typical sxs, always different sxs each time. Has had neg cultures tho. I never noticed anything really off before the onset of illness. His behavior is that of a normal child when he is ill, meaning he is down like 20 notches. He is only OCD when he is manic. He has violent mood swings, psychosis, etc, which have all improved greatly on his current vitamin treatment. For one, IDK if a 15 year old can be dx with PANDAS. Another thing, yeah first line tx is antibiotics, but if my son takes antibiotics it will screw up the yeast even more in addition to cause the effectiveness of his vitamin treatment to go down drastically. There is no way he can take steroids, even Nasonex for 2 days makes him psychotic. I highly doubt Tricare would cover the IV stuff, plus, he is not even textbook PANDAS. So I know that the doc is going to want to decrease these antibodies, but how? None of the standard treatments would work. He was just on Omnicept for 5 weeks to get a clean CT scan with no noticable difference in behaviors and he was actually actively homicidal and in the hospital at the time. Ideas?????