I posted this same post in the Tourette's forum and they suggested I post it over here to see what you all had to say...
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Hi everyone! I am new here as my husband's tics have been causing concern for us. This is long, so bear with me!
Ever since I've known him (6 years) he has had mild tics (eye rolling occasionally, sniffing always) but I never really thought of them as tics, more like mannerisms...and he never knew they were tics either, but they were always noticeable. He's 27 years old now, if that makes a difference.
2 summers ago I noticed him kind of grimmacing his lower lip over and over, and asked him about it. He said it was nothing- just ignore it. Then he started tensing his stomach muscles all the time. I started getting worried so we were looking things up online, and found that he has motor tics. All that we were reading made sense, and he actually said that when he was a kid he remembers adults around him saying that he might have Tourette's but he never went to the doctor for it or anything (so that shows that he has had some form of tics his whole life).
Also around this time he got Lyme disease, detected about a month later, and treated with 2 cycles of antibiotic, and has had negative blood tests since.
He went to the neurologist about the tics and was told he has chronic tic disorder and that was basically that. We figured it was just something he had to deal with, and it didn't really affect his life much, it was just kind of annoying.
He has more recently developed a leg tic that causes him pretty severe muscle soreness by the end of the day. He tenses his feet and legs. I feel really bad for him. He says it is worse when he is stressed and when he is driving and that if he really concentrates he can delay doing the tic but he can't stop it. He says he also does that stomach clench about once a day but it is not noticeable to me, and it used to be horrible. The pain this tic is causing him is leading us to want to find relief for him, or an answer to why this is happening.
Can anyone give us any guidance on where to begin? Do you think the Lyme has anything to do with it (my husband thinks it might, but I think it doesn't because of the negative blood test, and because he has had some form of tics - just not this severe - his whole life)?
We are at a loss. We know that he has it "easy" compared to some people, but he is in pain every night and it just scares me to think that his body is acting this way, and wondering if it could get worse, or if our children are more likely to have this because he does. I guess I'm just looking for some guidance on what we can do, if anything!
Thank you all for listening/reading!
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That was the original post I posted...since then his leg tics have gone away but the abdominal tic is in FULL force it is horrible to see and it is really stressing him out not to mention causing him a lot of discomfort.
What do you all think regarding the Lyme disease? Do you think it has something to do with the tic he is experiencing? Would he have other symptoms? Any insight you can give me would be so helpful. Thank you.