In this article five readers share their reaction to our series on “Why the Tourette Syndrome Association Should be Investigated.”
My poor boy suffered through a lot. Tics started appearing at three. By seven he was doing horrible with all around multiple tics!! He was walking on all fours and having a terrible time with allergies! We were told he had asthma along with all his tics.
Diet changes helped my child. Environmental changes helped my child.
We went all organic and used healthy cleaning products. We put our son on a diet that reduced his allergies and sensitivities greatly. We boosted his immune system with probiotics and then in the long run he didn’t get sick as often.
My child never took an allergy med and his tics improved significantly! I would be more than happy to stand in front of millions of people and say that my children’s tics were helped by diet, improving the immune system and addressing environment factors.
If it wasn’t for the ACN Latitudes.org website to guide me, I fear what would happen to my children.
To me, what is TS? I feel I have fought it off so far with my children. I have seen a huge difference and this is the route I will continue and to this day I will not classify them as TS because they are improved. You cannot just classify a child with a tic and put him into a group of “Tourette syndrome.” – mar
My son’s tics were not bad until we moved to Florida and even then they were not considered to be bad enough to deal with the side effects from the medication. However, I noticed that it was the worst in the spring and when we left the state they were almost non-existent.
After lots of research I read about magnesium deficiencies and we changed his diet. Magnesium and allergy meds took away the awful head jerk tic that he had. It was an easy solution, and its heartbreaking that this association will not recognize these treatment options. Need to look into the root cause –Angie Morton
It is shocking that the TSA wasn’t willing to make the public aware of alternative treatments that could potentially be helpful at mitigating tics. What is the risk in telling people that there have been reported cases of people who have gotten better by making some simple adjustments to their diet and their environment?
There is absolutely no harm in providing this type of information, which can potentially benefit so many people. Avoiding allergens, artificial colors/flavors, molds, perfumes, pesticides, and other harsh chemicals is a “no-brainer” that everyone should be doing… regardless if you have tics. These adjustments are not controversial or risky for people to try. Why is the TSA so eager to put kids on drugs with harsh side effects when there are much safer alternatives to first consider?
I am sure it has been a very frustrating journey for you and your non-profit organization, but I applaud you for doing this series against the TSA. I truly hope that this series of postings opens up their minds to sharing natural treatment options. Chris
Thank you for your courage and your voice. I agree you can substitute the word Autism, Alzheimer, or Cancer. Autism went from 1 in 10,000 to 1in 58. It is scientifically impossible to have an explosion of a genetic disorder but Drs continue to tell parents it must be somewhere in their family history and sadly most believe. Our Autism Dr. like on this forum finds severe allergies, infections, gut issues and triggers. He wonders probably just like you, “Who is drinking the Koolaid?” –3bmom
My brother had tics when we were growing up. Our mom had found a doctor who told her there were day-to-day things that could make a difference. I know some foods were a problem and also scented things (bath products, laundry soap, cleaning products, candles). I don’t remember all the changes we made, but I remember since we all played sports that Gatorade was no longer in our gym bags. We also got rid of all the junk food that was artificially colored and flavored and although I personally was not sensitive to it, we made a deal in the family that we’d all avoid it to be supportive. I still use unscented laundry detergent to this day! She kept a journal and figured things out. He is doing fine now.
The tics affected the whole family. I guess for me, I wish we had known about all these things when he first started with just his eyes rolling. Before things progressed to the serious stage.
I know this isn’t a “study,” but it helped in my family and I think it could help others too. No harm in trying, anyway! (We were all healthier for the changes we made in our family.)