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Mycoplasma confusion


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I'v heard 2 different answers from 4 different docs on Mycoplasma IgG. Three told me they don't look at the IgG. That that shows past infection and they only look at the IgM. One does consider IgG results. My son's IgG has been increasing since March. In March it was 2.20 with range being <.91; in June it was 3.32 with range being <.91 and Yesterday I get his resent result of 546 with range being 0-99. His IgM is still normal. What does this mean?

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Based on our experience with Sandra it means that he should be treated with antibiotics long term.

We too have heard all sort of opinions that tried to sound highly educated on her ever rising MycoP IgG (her white cell count too was slightly eleveted all that time - 5 years but most doctors did not care much about it either... ) My hunch (and our very brave GP tends to agree with me) is that the more "specialised" the specialist is the more likely one is to stick to the safe and known, even when it is not very logical. Active thinking is not always part of the highly structured "protocol" and algorithm based thinking they are trained in.

On the other hand, if MycoP is a stealthing germ, why not to assume that ever rising IgG values point at it hiding somewhere within the cells?

The proof is in the result, and in our case it seems that doctors who are afraid of trying to think outside the box are mistaken.

Sandra, who had Mycoplasma pneomonia back in 2005, which caused her PITAND never tested positive for IgM because she was tested only several months after the initial condition started. Her IgG was first 65 (35 is the limit value by our lab) and it kept rising throughout the 5 years, always going down after abx/prednison/IVIG treatments but not significantly, and then going up again and kept going higher, until in reached 200 last December. Following the Sammy model, our GP and I decided that what was good for Strep could very well be good for MycoP and started high daily dose long term abx (azith). In March 2010 her MycoP IgG was down to 135 and this June it was 39. All vocal symptoms are gone, 90% if not more of the movement disorder is gone and we are left "only" with the debilitating OCD and some movements I think are more OCD than chorea-athetosis.

We keep her on high daily dose of milk acid germs and so far all seems to be going in the right way. Not sure how long this way may be, because this is a loooooooong process.

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I'v heard 2 different answers from 4 different docs on Mycoplasma IgG. Three told me they don't look at the IgG. That that shows past infection and they only look at the IgM. One does consider IgG results. My son's IgG has been increasing since March. In March it was 2.20 with range being <.91; in June it was 3.32 with range being <.91 and Yesterday I get his resent result of 546 with range being 0-99. His IgM is still normal. What does this mean?

 

 

well to add to the confusion..Buster kindly replied to my question regarding the same thing

 

http://www.latitudes.org/forums/index.php?showtopic=9975

 

the concern is this redraw was done about 3 weeks ago..on a rise and last week ds started to slide :(

so if this is the case as per the ts paper out of turkey withe ts patients...

we now need to find doc who will treat myco p long term!!!

 

 

was it the zith causing a problem ..maybe clostridia..

or could it be myco p emererging per hd zith...

would it act like lyme and once you start treating it herxes and rises

Edited by Fixit
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It is my understanding that Mycoplasma can be just as toxic as Lyme. Might take many months to clear with multiple antibiotics. Many of the ILADS Dr. that some of us are now seeing would treat the IgG especially if it was rising, the child was symptomatic and responsive to treatment.

 

I will ask our Dr. on Wednesday why some do not produce IgM results.

 

Good Luck.

Edited by SF Mom
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