Joan Pandas Mom Posted September 12, 2010 Report Share Posted September 12, 2010 I'v heard 2 different answers from 4 different docs on Mycoplasma IgG. Three told me they don't look at the IgG. That that shows past infection and they only look at the IgM. One does consider IgG results. My son's IgG has been increasing since March. In March it was 2.20 with range being <.91; in June it was 3.32 with range being <.91 and Yesterday I get his resent result of 546 with range being 0-99. His IgM is still normal. What does this mean? Link to comment Share on other sites More sharing options...
Bat_Sheva_Myllys Posted September 12, 2010 Report Share Posted September 12, 2010 Based on our experience with Sandra it means that he should be treated with antibiotics long term. We too have heard all sort of opinions that tried to sound highly educated on her ever rising MycoP IgG (her white cell count too was slightly eleveted all that time - 5 years but most doctors did not care much about it either... ) My hunch (and our very brave GP tends to agree with me) is that the more "specialised" the specialist is the more likely one is to stick to the safe and known, even when it is not very logical. Active thinking is not always part of the highly structured "protocol" and algorithm based thinking they are trained in. On the other hand, if MycoP is a stealthing germ, why not to assume that ever rising IgG values point at it hiding somewhere within the cells? The proof is in the result, and in our case it seems that doctors who are afraid of trying to think outside the box are mistaken. Sandra, who had Mycoplasma pneomonia back in 2005, which caused her PITAND never tested positive for IgM because she was tested only several months after the initial condition started. Her IgG was first 65 (35 is the limit value by our lab) and it kept rising throughout the 5 years, always going down after abx/prednison/IVIG treatments but not significantly, and then going up again and kept going higher, until in reached 200 last December. Following the Sammy model, our GP and I decided that what was good for Strep could very well be good for MycoP and started high daily dose long term abx (azith). In March 2010 her MycoP IgG was down to 135 and this June it was 39. All vocal symptoms are gone, 90% if not more of the movement disorder is gone and we are left "only" with the debilitating OCD and some movements I think are more OCD than chorea-athetosis. We keep her on high daily dose of milk acid germs and so far all seems to be going in the right way. Not sure how long this way may be, because this is a loooooooong process. Link to comment Share on other sites More sharing options...
Fixit Posted September 12, 2010 Report Share Posted September 12, 2010 (edited) I'v heard 2 different answers from 4 different docs on Mycoplasma IgG. Three told me they don't look at the IgG. That that shows past infection and they only look at the IgM. One does consider IgG results. My son's IgG has been increasing since March. In March it was 2.20 with range being <.91; in June it was 3.32 with range being <.91 and Yesterday I get his resent result of 546 with range being 0-99. His IgM is still normal. What does this mean? well to add to the confusion..Buster kindly replied to my question regarding the same thing http://www.latitudes.org/forums/index.php?showtopic=9975 the concern is this redraw was done about 3 weeks ago..on a rise and last week ds started to slide so if this is the case as per the ts paper out of turkey withe ts patients... we now need to find doc who will treat myco p long term!!! was it the zith causing a problem ..maybe clostridia.. or could it be myco p emererging per hd zith... would it act like lyme and once you start treating it herxes and rises Edited September 12, 2010 by Fixit Link to comment Share on other sites More sharing options...
sf_mom Posted September 13, 2010 Report Share Posted September 13, 2010 (edited) It is my understanding that Mycoplasma can be just as toxic as Lyme. Might take many months to clear with multiple antibiotics. Many of the ILADS Dr. that some of us are now seeing would treat the IgG especially if it was rising, the child was symptomatic and responsive to treatment. I will ask our Dr. on Wednesday why some do not produce IgM results. Good Luck. Edited September 13, 2010 by SF Mom Link to comment Share on other sites More sharing options...
Joan Pandas Mom Posted September 16, 2010 Author Report Share Posted September 16, 2010 Hi SF Mom, just wondering if you had a chance to ask the doc about the Mycoplasma IgM. Thanks and hope all is going well there. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now