tapiash Posted September 12, 2010 Report Share Posted September 12, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. Link to comment Share on other sites More sharing options...
KeithandElizabeth Posted September 12, 2010 Report Share Posted September 12, 2010 Wow! What great news!!! These are such great posts to read! Thanks for sharing. Elizabeth Link to comment Share on other sites More sharing options...
peglem Posted September 12, 2010 Report Share Posted September 12, 2010 Wow, Shirley, I'm not sure where my cockles are, but that does warm them! Wonderful news! Link to comment Share on other sites More sharing options...
Fixit Posted September 12, 2010 Report Share Posted September 12, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. THAT IS SO GREAT!!!!! Link to comment Share on other sites More sharing options...
Lori Ann Posted September 12, 2010 Report Share Posted September 12, 2010 Fantastic! You give hope to us that are still waiting to see the right doctors and get a treatment that works. Thank you and enjoy having your child back! Link to comment Share on other sites More sharing options...
thereishope Posted September 12, 2010 Report Share Posted September 12, 2010 Thank you for updating!I'm so happy for you,your son, and your family!!!! Link to comment Share on other sites More sharing options...
Sylvia Posted September 12, 2010 Report Share Posted September 12, 2010 That is indeed wonderful news, and so encouraging for the rest of us! Link to comment Share on other sites More sharing options...
tapiash Posted September 12, 2010 Author Report Share Posted September 12, 2010 Fantastic! You give hope to us that are still waiting to see the right doctors and get a treatment that works. Thank you and enjoy having your child back! [/qu There is hope but it takes a lot of perseverance and a consistent support group. Remember who you are fighting for. It doesn't matter what anyone says or believes. Do what you have to get your child better. There were some days I literally could not get out of bed because I was so exhausted. It is a long process with ups and downs and probably more downs than ups but you will find help. Follow your heart and never give up. Please keep us in your thoughts while we prepare for our third IVIG. IVIG is of the down times I mentioned. Not a very pleasant procedure. Link to comment Share on other sites More sharing options...
Fixit Posted September 12, 2010 Report Share Posted September 12, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. Tap..your son is 9ish? and if you don't mind me asking... how did the 3 ivig's protocal come about??? are they 8 weeks apart??? Every childs success helps us all!! Link to comment Share on other sites More sharing options...
tapiash Posted September 12, 2010 Author Report Share Posted September 12, 2010 Fixit I am not sure how 3 IVIG protocol came about. That's just what our doctor ordered. We had them every 28 days at 2 g. My son turned 9 in June. Link to comment Share on other sites More sharing options...
Doug Posted September 12, 2010 Report Share Posted September 12, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. Hello, I am so happy that your son is doing good are you on any abx's at all? and what is liquid silver? Our DD had IVIG in Feb with Dr.k and she is also doing great,We take one day at a time and enjoy all of the good days just incase the bad ones come back. Thank's Tracie&Doug Link to comment Share on other sites More sharing options...
kimballot Posted September 13, 2010 Report Share Posted September 13, 2010 Many congrats... I hope you have a GREAT school year!! Link to comment Share on other sites More sharing options...
tapiash Posted September 13, 2010 Author Report Share Posted September 13, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. Hello, I am so happy that your son is doing good are you on any abx's at all? and what is liquid silver? Our DD had IVIG in Feb with Dr.k and she is also doing great,We take one day at a time and enjoy all of the good days just incase the bad ones come back. Thank's Tracie&Doug Silver supports yeast,immune system,gastro problems. He takes 5 squirts daily. During and after IVIG he will take antibiotics again but then wean gradually. Some say it is risky but it is working for us. When it no longer works we will try something else. I am not oppossed to antibiotics but it was too hard to keep up with 6 supplements all at different times. We were taking yeast med,probiotics,antibiotics,fish oil, clay Link to comment Share on other sites More sharing options...
philamom Posted September 13, 2010 Report Share Posted September 13, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. Hello, I am so happy that your son is doing good are you on any abx's at all? and what is liquid silver? Our DD had IVIG in Feb with Dr.k and she is also doing great,We take one day at a time and enjoy all of the good days just incase the bad ones come back. Thank's Tracie&Doug Silver supports yeast,immune system,gastro problems. He takes 5 squirts daily. During and after IVIG he will take antibiotics again but then wean gradually. Some say it is risky but it is working for us. When it no longer works we will try something else. I am not oppossed to antibiotics but it was too hard to keep up with 6 supplements all at different times. We were taking yeast med,probiotics,antibiotics,fish oil, clay That's great news! Do you use the Mesosilver by mouth? Good luck with upcoming IVIG! Link to comment Share on other sites More sharing options...
tapiash Posted September 13, 2010 Author Report Share Posted September 13, 2010 School has started and I am back to work. I have barely had time to breathe. My DS is doing amazing. He is about 90 percent better . He is enjoying school playing football. Academics are a little below average but that is tremendous improvement from last year. He was two grade levels below where he need to be. He had two IVIG's over the summer. He will have another at the end of the month. Right now he is only taking liquid silver and Omega 3. I have pulled him off of everything. There has been strep,bronchitis and lots of others germs going around but so far he is a fighter. I will start prepping him for his final Ivig next week. Our son is coming back to us. I forgot how calm things were in our home before all of this started a year ago. My DS has his moments but I am able to distinguish a "pandas" moment or a t ypical 9 year old moment. I will be forever grateful to each and every person on here who has offered their support, prayers and advice. Each of you will always have a special reserved place in my heart. Thank You. Hello, I am so happy that your son is doing good are you on any abx's at all? and what is liquid silver? Our DD had IVIG in Feb with Dr.k and she is also doing great,We take one day at a time and enjoy all of the good days just incase the bad ones come back. Thank's Tracie&Doug Silver supports yeast,immune system,gastro problems. He takes 5 squirts daily. During and after IVIG he will take antibiotics again but then wean gradually. Some say it is risky but it is working for us. When it no longer works we will try something else. I am not oppossed to antibiotics but it was too hard to keep up with 6 supplements all at different times. We were taking yeast med,probiotics,antibiotics,fish oil, clay That's great news! Do you use the Mesosilver by mouth? Good luck with upcoming IVIG! Yes by mouth Link to comment Share on other sites More sharing options...
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