mom love Posted September 2, 2010 Report Share Posted September 2, 2010 Hi there, we are wanting to consult with a doctor or two who has direct experience with treating PANDAS. We would like to consult and would like our local doctor who is open minded to consult as well in order to know how long to keep on antibiotics, which antibiotic to use and how to decide what prophylactic to use and dosage. The big doctors I see from this site are: Dr. Denis Bouboulis, CT Dr. Tanya Murphy, FLA - does she actually see patients? Dr Trifiletti Dr. Latimer Dr. Susan Schulman, Brooklyn, NY and I read about Dr. Catherine Nicolaides in NJ from "Saving Sammy" ANY actual experiences consulting with or visiting any of these doctors is appreciated ie. do they do phone consults? Do they lean toward antibiotics or IVIG? What is the wait time for a consult? Do you know the cost and contact numbers? Realizing every doctor has different opinions and protocol, any insights would appreciated so we can choose a direction. Thanks! mom love Link to comment Share on other sites More sharing options...
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