lfran Posted August 14, 2010 Report Share Posted August 14, 2010 AWESOME!!! Link to comment Share on other sites More sharing options...
T_Mom Posted August 14, 2010 Report Share Posted August 14, 2010 Incredible -- and from Tom Insel himself, this is huge. I am almost too moved to write anything here -- YES to all said above -- finally... Doctors, Moderators, Pandas parents, thank you, thank you, thank you-- Link to comment Share on other sites More sharing options...
Diana Posted August 15, 2010 Report Share Posted August 15, 2010 Thank you very much for finding this Vickie. I hope our network of parents can assist in encouraging NEW ONSET pandas cases in participating in the study. My understanding is that they will be focusing on Severe Onset cases. The naysayers have viewed many of the severe onset cases videos of children and are sufficiently alarmed to agree that this type of study is needed. Terrific! Link to comment Share on other sites More sharing options...
melanie Posted August 15, 2010 Report Share Posted August 15, 2010 Does anyone know what dosage of IVIG they are planning??? Link to comment Share on other sites More sharing options...
Luna2 Posted August 15, 2010 Report Share Posted August 15, 2010 Finally, NIMH is beginning to catch up to our PANDAS forum. It is all of us, this incredible cyberspace parents group, that has created change. Thank you for being there. I try not to imagine what would happen to our children and all of the other children without this determined, creative, caring group. and thank you ACN. Link to comment Share on other sites More sharing options...
norcalmom Posted August 15, 2010 Report Share Posted August 15, 2010 If anyone hears what tests and protocol for the ivig and antibiotics they are using I'd be very interested! Link to comment Share on other sites More sharing options...
norcalmom Posted August 15, 2010 Report Share Posted August 15, 2010 If anyone finds out protocol for ivig and antibiotics the will use in the study, and what tests they are running, please let us know! Link to comment Share on other sites More sharing options...
tpotter Posted August 15, 2010 Report Share Posted August 15, 2010 Did you see the part about increasingly vocal parents??? Link to comment Share on other sites More sharing options...
thereishope Posted August 15, 2010 Author Report Share Posted August 15, 2010 Also, it does state that the research will involve antibody identification too. If you click on "Bench to Bedside" it states that Swedo, Leckman and Cunningham are those heading the research. Link to comment Share on other sites More sharing options...
mama2alex Posted August 15, 2010 Report Share Posted August 15, 2010 I cried when I saw this post. Thank you for bringing this to our attention Vickie! I can't wait to show our pediatrician. Link to comment Share on other sites More sharing options...
saidie10 Posted August 16, 2010 Report Share Posted August 16, 2010 This is so amazing!!!! I can't wait to pass this on to all the doctors we have come across who say they must practice "evidence based medicine". I can't wait until every child that walks into a pediatricians office presenting with PANDAS symptoms test for strep and investiages it further instead of sending them on the Neurologist to get on psychiatric medication! This is one step closer to that for sure! BRING IT ON!!!!!! Link to comment Share on other sites More sharing options...
airial95 Posted August 16, 2010 Report Share Posted August 16, 2010 This is a great way to start a Monday! Link to comment Share on other sites More sharing options...
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