Jump to content
ACN Latitudes Forums

NIH Post About PANDAS!


Recommended Posts

Incredible -- and from Tom Insel himself, this is huge.

 

I am almost too moved to write anything here -- YES to all said above -- finally...

 

Doctors, Moderators, Pandas parents, thank you, thank you, thank you--

Link to comment
Share on other sites

Thank you very much for finding this Vickie. I hope our network of parents can assist in encouraging NEW ONSET pandas cases in participating in the study. My understanding is that they will be focusing on Severe Onset cases. The naysayers have viewed many of the severe onset cases videos of children and are sufficiently alarmed to agree that this type of study is needed. Terrific!

Link to comment
Share on other sites

Finally, NIMH is beginning to catch up to our PANDAS forum. It is all of us, this incredible cyberspace parents group, that has created change. Thank you for being there. I try not to imagine what would happen to our children and all of the other children without this determined, creative, caring group. and thank you ACN.

Link to comment
Share on other sites

This is so amazing!!!! I can't wait to pass this on to all the doctors we have come across who say they must practice "evidence based medicine". I can't wait until every child that walks into a pediatricians office presenting with PANDAS symptoms test for strep and investiages it further instead of sending them on the Neurologist to get on psychiatric medication! This is one step closer to that for sure! BRING IT ON!!!!!!

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...