momtocole1 Posted July 14, 2010 Report Share Posted July 14, 2010 Hello, I wanted to take a poll to see who on the forum has received IVIG services from Coram Infusion Services. They are a division of Apria Healthcare. They are nationwide and they did my son's 2nd IVIG for 1/4 of the cost that we had to pay at Denver Children's Hospital. Could people let me know if they have used them, if they are going to use them? I spoke to one of the sales reps for the company, Colin Ruepelle, and I am going to negotiate with him to see if he could offer an additional discount to PANDAS families or possibly set up some type of a grant program, for families that are struggling and cannot get IVIG covered. Has anyone been able to get it covered? He told me that one family in either New Mexico or Arizona? Was able to get it covered by CIGNA. I thought that is wonderful.... My son is doing very well after second IVIG. He still continues to struggle with OCD, but he is 80% better. Not raging like he was. He was competely incapacitated before the IVIG's. Still on high dose Zith 500 mg. He has lost 10 pounds too... He is 12. Thank you, Judy... Link to comment Share on other sites More sharing options...
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