Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

wornoutmom

Michigan PANDAS support group

Recommended Posts

Hope this is ok to post here! I just wanted to share that we've started an email loop for PANDAS parents in Michigan, with the hopes of sharing information and support about local doctors etc and hopefully finding a way to all get together someday soon. Heck, maybe someday we will change the landscape of PANDAS here in this state! So if there is anyone on the forum I have NOT emailed that is from Michigan (or nearby), please feel free to PM me to be added to the loop.

 

-Rachel

Share this post


Link to post
Share on other sites

Bump-I don't want to miss anyone if this gets too far back. Personally, I know I am not on the forum daily right now so I want this to stay in the top page for a little bit.

Thank you,

Mary

Share this post


Link to post
Share on other sites

Hope this is ok to post here! I just wanted to share that we've started an email loop for PANDAS parents in Michigan, with the hopes of sharing information and support about local doctors etc and hopefully finding a way to all get together someday soon. Heck, maybe someday we will change the landscape of PANDAS here in this state! So if there is anyone on the forum I have NOT emailed that is from Michigan (or nearby), please feel free to PM me to be added to the loop.

 

-Rachel

Hi this is so good to hear! Even though I must admit that Im embarrassingly computer/techno illiterate and I dont really even know what "Email loop" means, it sound like something I dont want to be left out of-Its good to be "in the loop" right? so add me in! I tried to PM you but it wouldnt go through-you can PM me if you need to. It will be so nice to connect with other families in the state, I have been noticing all the other Michiganders on here lately,so glad you are doing this for us. Angela

Edited by kengela

Share this post


Link to post
Share on other sites

Hope this is ok to post here! I just wanted to share that we've started an email loop for PANDAS parents in Michigan, with the hopes of sharing information and support about local doctors etc and hopefully finding a way to all get together someday soon. Heck, maybe someday we will change the landscape of PANDAS here in this state! So if there is anyone on the forum I have NOT emailed that is from Michigan (or nearby), please feel free to PM me to be added to the loop.

 

-Rachel

Hi this is so good to hear! Even though I must admit that Im embarrassingly computer/techno illiterate and I dont really even know what "Email loop" means, it sound like something I dont want to be left out of-Its good to be "in the loop" right? so add me in! I tried to PM you but it wouldnt go through-you can PM me if you need to. It will be so nice to connect with other families in the state, I have been noticing all the other Michiganders on here lately,so glad you are doing this for us. Angela

 

hi angela,

you might try Worried Dad...I think he's in Michigan too and can maybe help you get into the e-mail loop

Share this post


Link to post
Share on other sites

Angela and Cathy:

So So sorry I didn't catch this post earlier!! I had been on vacation that first week in April with no wifi, so lost a week of posts and this got buried until I was looking farther back somemore tonightand came across the thread. I have PMd you some more info!!

-Rachel

Share this post


Link to post
Share on other sites

I am a parent who has a son who underwent the ivig treatment for pandas. I am looking for a dr. In Michigan who knows anything about pandas and how to monitor him. Any suggestions?

Share this post


Link to post
Share on other sites

nicklemama and lln121 -

 

I am hoping one of you can help me. I live n Michgian and have recently been working with a Pshcologist who suggested I look into PANDAS sysndrom for my son. I would like to find a pediatrician that is familiar and has worked with patients. Your posts above have given me so hope. Can you help me?

 

Thank you!

Share this post


Link to post
Share on other sites

My 5 year old son has recently developed many symptoms consistent with PANDAS/PANS. He has frequent vocal and complex motor tics that are affecting daily activities. Frequent urination. More frequent nightmares. Dysgraphia. I could go on, but I really just need a referral to a provider who can wade through this with me and help figure out what is going on with my little dude. The stress of feeling helpless to find the right resources is really awful. We live in southeast MI. Any suggestions would be greatly appreciated, as he is starting KG in the fall and I want to get him as much help as possible, before that. Thank you!!!

Share this post


Link to post
Share on other sites

My 4 year old daughter recently developed very similar symptoms to those described by daymerelf. We are currently getting the runaround with doctors and hospitals despite our everyday lives being turned upside down. Any suggestions for doctors in MI who are familiar with this condition would be greatly appreciated. Thank you!!!

Share this post


Link to post
Share on other sites

Could I be added to any Michigan email loop, or group, too please?

I'm in the Metro Detroit area and have an unofficially diagnosed, (yet highly suspected by our Behavioral Therapist) 7 year old son. I could use some support and probably advice on our next step.

Thank you!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...