I think we might have found the carrier!

[matis_mom]

They just called from the pediatrician's office... DS14 came back positive on the culture. What I don't get is why they are calling today, when this was done over a week ago. PANDAS ds is showing a little bit of an up-kick in OCD, and the last few day some of the kids have been having what seems to be a 24-hr. stomach flu, but who knows any more! I did have them all tested last week, so I don't think they all have strep. It is interesting ds14 has never been + on the rapid, and even though they always do the two swabs and send one for culture, I wonder did they really send those out every time. DS14 is fit as a fiddle, has no symptoms right now. The nurse did mention they were going to treat him as a carrier and that it was going to be a bit different, so I am hopeful that they actually know what they are doing. We'll see tomorrow when we pick up the prescriptions.

 

Still waiting on everyone's bloodwork.

 

It is funny to be glad when you hear your son is sick (well, he's not really sick, just making others sick), but I am so glad we have found this! I also feel like saying "I knew it!" and was right to delay plasmapheresis. It also feels good to have something to show for all those doctors visits, and now the pediatrician seems to be taking it seriously.

 

I pray this is the beginning of long lasting healing!

 

Isabel

[saidie10]

They just called from the pediatrician's office... DS14 came back positive on the culture. What I don't get is why they are calling today, when this was done over a week ago. PANDAS ds is showing a little bit of an up-kick in OCD, and the last few day some of the kids have been having what seems to be a 24-hr. stomach flu, but who knows any more! I did have them all tested last week, so I don't think they all have strep. It is interesting ds14 has never been + on the rapid, and even though they always do the two swabs and send one for culture, I wonder did they really send those out every time. DS14 is fit as a fiddle, has no symptoms right now. The nurse did mention they were going to treat him as a carrier and that it was going to be a bit different, so I am hopeful that they actually know what they are doing. We'll see tomorrow when we pick up the prescriptions.

 

Still waiting on everyone's bloodwork.

 

It is funny to be glad when you hear your son is sick (well, he's not really sick, just making others sick), but I am so glad we have found this! I also feel like saying "I knew it!" and was right to delay plasmapheresis. It also feels good to have something to show for all those doctors visits, and now the pediatrician seems to be taking it seriously.

 

I pray this is the beginning of long lasting healing!

 

Isabel

 

Great news! Interested to see how they treat this!

[forjpj]

I know what you mean by being happy about someone being sick. Any answer is better than none!! Keep us posted on the treatment.

Sarah

[deby]

They just called from the pediatrician's office... DS14 came back positive on the culture. What I don't get is why they are calling today, when this was done over a week ago. PANDAS ds is showing a little bit of an up-kick in OCD, and the last few day some of the kids have been having what seems to be a 24-hr. stomach flu, but who knows any more! I did have them all tested last week, so I don't think they all have strep. It is interesting ds14 has never been + on the rapid, and even though they always do the two swabs and send one for culture, I wonder did they really send those out every time. DS14 is fit as a fiddle, has no symptoms right now. The nurse did mention they were going to treat him as a carrier and that it was going to be a bit different, so I am hopeful that they actually know what they are doing. We'll see tomorrow when we pick up the prescriptions.

 

Still waiting on everyone's bloodwork.

 

It is funny to be glad when you hear your son is sick (well, he's not really sick, just making others sick), but I am so glad we have found this! I also feel like saying "I knew it!" and was right to delay plasmapheresis. It also feels good to have something to show for all those doctors visits, and now the pediatrician seems to be taking it seriously.

 

I pray this is the beginning of long lasting healing!

 

Isabel

In our case my husband and my non PANDAS son were positive for strep, and I had high ASO too, now we're all in augmentin but the regular dose. I would like to know what the doctors will suggest you to do.

[kimballot]

Great detective work! Congrats - keep us posted.

[matis_mom]

I just picked up the prescription... 10 days of Clindamycin. It better work! Most other people I've read about were given 30 days when trying to clear a carrier... I might have to go back and ask for more, but in the meantime, I'm going to do all the "alternative" stuff I can as well to make sure we clear him. It'd be interesting to see what his titers are now that I know he actually had strep the day they drew blood, and also see if my PANDAS ds settled back down now that his brother is on antibiotics.

[matis_mom]

I just picked up the prescription... 10 days of Clindamycin. It better work! Most other people I've read about were given 30 days when trying to clear a carrier... I might have to go back and ask for more, but in the meantime, I'm going to do all the "alternative" stuff I can as well to make sure we clear him. It'd be interesting to see what his titers are now that I know he actually had strep the day they drew blood, and also see if my PANDAS ds settled back down now that his brother is on antibiotics.

Now the plot thickens... My husband's ASO: 270. They are calling in a prescription for him, I think penicillin... He has to go back and see the doc anyway because, at my insistence, they checked thyroid too and it's off (I knew it again! )