sf_mom Posted June 2, 2010 Report Share Posted June 2, 2010 For those of you that suffer from Psoriasis and have PANDAS children..... I thought this link was important enough to repost with proper heading so its easy to locate in a search. http://www.jimmunol.org/cgi/content/full/176/11/7104 Link to comment Share on other sites More sharing options...
Fixit Posted June 2, 2010 Report Share Posted June 2, 2010 For those of you that suffer from Psoriasis and have PANDAS children..... I thought this link was important enough to repost with proper heading so its easy to locate in a search. http://www.jimmunol.org/cgi/content/full/176/11/7104 the last time it was posted, i forwarded it to my brother in low with terrible psoriasis....(.dh slight tic..a great aunt with very mild ocd.. any correlation ) Link to comment Share on other sites More sharing options...
sf_mom Posted June 2, 2010 Author Report Share Posted June 2, 2010 Geez, maybe. How often is your son around brother-in-law? -Wendy For those of you that suffer from Psoriasis and have PANDAS children..... I thought this link was important enough to repost with proper heading so its easy to locate in a search. http://www.jimmunol.org/cgi/content/full/176/11/7104 the last time it was posted, i forwarded it to my brother in low with terrible psoriasis....(.dh slight tic..a great aunt with very mild ocd.. any correlation ) Link to comment Share on other sites More sharing options...
Fixit Posted June 2, 2010 Report Share Posted June 2, 2010 about every other weekend????? i didn't really put it together till you said that....sssshhhhooooooottttttt Geez, maybe. How often is your son around brother-in-law? -Wendy For those of you that suffer from Psoriasis and have PANDAS children..... I thought this link was important enough to repost with proper heading so its easy to locate in a search. http://www.jimmunol.org/cgi/content/full/176/11/7104 the last time it was posted, i forwarded it to my brother in low with terrible psoriasis....(.dh slight tic..a great aunt with very mild ocd.. any correlation ) Link to comment Share on other sites More sharing options...
sf_mom Posted June 2, 2010 Author Report Share Posted June 2, 2010 Have your brother-in-law check his titers. Do you notice a flair of TICS after they are together? -Wendy Link to comment Share on other sites More sharing options...
matis_mom Posted June 3, 2010 Report Share Posted June 3, 2010 Have your brother-in-law check his titers. Do you notice a flair of TICS after they are together? -Wendy This is killing me... the link won't open for me and my HUSBAND has psoriasis... can you tell me in a few words what this means??? Link to comment Share on other sites More sharing options...
matis_mom Posted June 3, 2010 Report Share Posted June 3, 2010 Ok, got the link to work now. So it says that psoriasis is actually an autoimmune response to strep, and tonsillectomy brings remission, right? I guess that tells me now I know where the "autoimmune" thing comes from (not MY side of the family! like it matters anyway!) My husband did get strep a lot as a kid and his tonsils were removed. But, he still has psoriasis! I guess I need to start charting and see if I find a relationship between "flares" of ds and dh! And I'll make sure to get dh to check titers... I'm so sick of doctors! Isabel Link to comment Share on other sites More sharing options...
sf_mom Posted June 3, 2010 Author Report Share Posted June 3, 2010 It also implies that flairs of psoriasis are the result of strep exposures. When your kids all had strep was his psoriasis bad? Link to comment Share on other sites More sharing options...
matis_mom Posted June 3, 2010 Report Share Posted June 3, 2010 It also implies that flairs of psoriasis are the result of strep exposures. When your kids all had strep was his psoriasis bad? That's the million dollar question, isn't it? I wish I had an answer, but just now I am connecting these dots (thanks for posting it). I do remember not too long ago his face looked terrible, red and puffy and all his wrinkles were very noticeable, but I can't tell exactly that was, as I'm busy enough taking care of the kids' ailments... but I'll be watching for that in the future! I am going to be hopeful and think maybe after we do plasmapheresis and no longer have the "canary effect" with ds, I will be able to tell just by looking at my dh's face if we have strep brewing! Wouldn't that be cool? Link to comment Share on other sites More sharing options...
sf_mom Posted June 3, 2010 Author Report Share Posted June 3, 2010 Who is doing the plasmapheresis for your son? Perhaps bring this article with you to discuss your DH's situation.... Antibiotics might be in order for him to protect your son? Definitely do titers on DH!!!! It will help with your Dr. to provide some perspective on the 'FAMILY' situation. I am OVERLY convinced the entire family needs to be checked and you have to look at the wellness for the family. I know its hard with so many children but... I've got everyone on the same regime. My DH was always getting sick with the children. He has high titers, I do not, etc. etc. -Wendy Link to comment Share on other sites More sharing options...
matis_mom Posted June 3, 2010 Report Share Posted June 3, 2010 Who is doing the plasmapheresis for your son? Perhaps bring this article with you to discuss your DH's situation.... Antibiotics might be in order for him to protect your son? Definitely do titers on DH!!!! It will help with your Dr. to provide some perspective on the 'FAMILY' situation. I am OVERLY convinced the entire family needs to be checked and you have to look at the wellness for the family. I know its hard with so many children but... I've got everyone on the same regime. My DH was always getting sick with the children. He has high titers, I do not, etc. etc. -Wendy We are doing it at Georgetown, through Dr. Latimer. She already ok'd it, and we would have done it in May except I wanted more time to figure out the family thing... Dr. Latimer agreed it was best to wait. It is just amazing every day I learn something new in this forum, and there seems to be no end to the things that need to be looked at! We started with this PANDAS thing almost a year ago, and I'm thinking if I had done this all from the beginning, we might be better off right now. But then again, things take time and one learns by experience. I am so grateful to you and all who share their experiences and new articles. I would love to keep the whole family on good supplements, but the cost is prohibitive at this point. I need to sort of concentrate on the ones who need it most. I am convinced dh has some serious underlying issues he needs to work on, mainly through diet (majoy ice-cream addiction!), but he needs to make that decision. I keep hinting, but don't want to nag. At least he made an appointment to get his titers checked and hopefully they will check his thyroid and adrenals too. If his titers don't reveal anything, I will try to somehow get him on abxs at least before/after we do plasmapheresis. Rats! As I was typing this I got a call from my dr... my ASO is 237! I did check myself everytime they had strep, always negative... They wanted to put me on amox 875, I don't want to do something I'm pretty positive is not going to work, but at the same time I am nursing a baby... I am going in tomorrow to talk to my doc and see. Link to comment Share on other sites More sharing options...
sf_mom Posted June 4, 2010 Author Report Share Posted June 4, 2010 I found this interesting: hdIVIG drastically improves psoriasis....... one patient after 3 hdIVIGs all symptoms resolved. http://www.cidpusa.org/IVIG_Psoriasis.pdf Link to comment Share on other sites More sharing options...
Mary M Posted June 4, 2010 Report Share Posted June 4, 2010 Thanks for sharing this. I have had eczema on my hand for years. According to links I found when I went to this article...it can be hard to discern the difference between psoriasis and eczema on the hand...back to the dermatologist. Link to comment Share on other sites More sharing options...
deby Posted June 4, 2010 Report Share Posted June 4, 2010 Thank you for sharing this. I had psoriasis for 20 years, since it was always very mild it never really bother me. My question is , if this is the root of the problem, why it happened to my son at the age of 8 and not before? I'm going to an immunologist (he is the head of UCLA med center) on Monday, I'll discuss this issue with him. Link to comment Share on other sites More sharing options...
sf_mom Posted June 4, 2010 Author Report Share Posted June 4, 2010 Deby, Perhaps a series of events happened that finally cause your son's system to cave. Our son was exposed to a child with RF, got sick but seemed to recover on his own.... 6 months later, he got sick again and his first TIC of a cough started, this went on for an entire year...... sick again in June 2009 and 3 weeks later we had full blown PANDAs. You can read up on Sydenham's Chorea that also has a delayed response. -Wendy Thank you for sharing this.I had psoriasis for 20 years, since it was always very mild it never really bother me. My question is , if this is the root of the problem, why it happened to my son at the age of 8 and not before? I'm going to an immunologist (he is the head of UCLA med center) on Monday, I'll discuss this issue with him. Link to comment Share on other sites More sharing options...
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